Member has chosen to not make this information public.
Member not yet following any Pages.
Two part question. Is it possible for the heart to regain normal function (in terms of exercise tolerance) after multiple valve (mitral & aortic) replacements? Why or why not? What about atrial size and remodeling — does that improve as well? I have a history of rheumatic heart disease and my valves were replaced 3 years ago. I am in my 60s and very active but my fitness level has stayed the same.
@crashnam Hi Larry… I was wondering if your EP mentioned the 3 month 'blanking' period where you are expected to have episodes/PVCs etc as you recover from the procedure. I have done quite a bit of research about success rates for ablations and note that there really is no consensus about what that means. Generally though 1 or 2 months after is a little too soon but it is great that you are feeling better and that the ablation only lasted 4 hours, which to me means that it was not too challenging to fix I did ask my EP a year after my second ablation, when I have not had an episode – and he did confirm then that it was successful. He had given it only a 50/50 chance so either I was very lucky or I had a really good EP or both. Never mind that I may have to do it again. It feels strange in a way to think of it as a success when the procedure keeps you free from afib for 'only' a year but that is what it is. Mary
@lacudia Hello – I was wondering how you are doing after the AV node ablation and pacemaker implant. I find that most pacemaker recipients have it because of bradycardia or some sort of heart block. I am particularly interested in dual chamber PMs meant for Afib and flutter and how it all works. My EP is advocating it as a last resort should all the other options – 3rd ablation, propafenone, amiodarone, etc. does not work. Thanks.
Tue, Jun 18 12:25pm · Anyone going to 2019 NTM Physician/Patient Conference in Texas? in MAC & Bronchiectasis
@poppins I agree it is rather overwhelming — even more so at the conference itself. I was very interested in the epidemiologists presentations but that's me. If you are interested in treatments I would focus on those that cover these topics (the conference agenda might be helpful and I will paste it below). I thought the most entertaining speaker was Jakko van Ingen and I did learn a few things about how they test for mycobacteria so I might start with that. Also, not all presentations have been posted as yet. I could not find the one on managing side effects – perhaps later today or tomorrow.
8:40 – 9:15 a.m. Epidemiology Around the World
9:15 – 9:45 a.m. Patient Panel Moderated by Anne E. O’Donnell, MD & Gregory Tino, MD
9:45 – 10:15 a.m. Environmental Factors & Reducing Exposure Rachel Thomson, PhD, MBBS
10:30 – 11:00 a.m. Evaluating & Treating Bronchiectasis Patients Gregory Tino, MD
11:30 a.m. – 12 p.m. NTM: Who, How & Where to Treat Charles L. Daley, MD & David E. Griffith, MD
1 – 1:30 p.m. The Role of the Laboratory Jakko van Ingen, MD, PhD
2 – 2:30 p.m. Comorbidities of NTM & Bronchiectasis
2:30 – 3 p.m. The Importance of Airway Clearance for Patients Patrick A. Flume, MD
3:15-3: 45 New Therapies Kevin L. Winthrop, MD, MPH
3:45 – 4:15 p.m. Patient-Focused: Nutrition & Mental Health
Kristen E. Holm, PhD, MPH
Mon, Jun 17 11:49am · Anyone going to 2019 NTM Physician/Patient Conference in Texas? in MAC & Bronchiectasis
Videos of the presentations were recently posted.
@jaqueela I find sometimes the medical profession does not do a great job of telling patients what to expect after a big procedure. A little reassurance sometimes goes a long way. I am a big fan of Dr. John who is an EP who has first hand experience with afib. He does a great job on his website and I hope you find the following helpful…
I've been on metoprolol for more than 10 years but it has always been made clear to me why. Metoprolol is a beta blocker and can be prescribed for high blood pressure so it is a surprise to learn that it can actually raise BP for some? For the most part though it is quite often used for rate control when your heart rate is on the high side and you are prone to PVCs — extra beats etc. That said I am not a medical professional and probably not explaining this well or thoroughly. Taking metoprolol has not been an issue for me as I am very sensitive to it and take an extremely low dose. I started out at only 12.5 mg daily and only recently went up to 25 mg. At those doses it is probably not causing the usual problems like sluggishness, low energy, brain fog… I would never adjust my dosage either way without consulting with the doctor who prescribed it or the EP who is managing my care. However, I would definitely be concerned if I was taking a high dose (that is subjective of course) and was experiencing symptoms. Even so, do discuss with the doctor as it is never a good idea to suddenly increase or decrease medication on your own.