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Posts (11)

Wed, Apr 10 8:12pm · New Daily Persistent Headache in Chronic Pain

do you happen to know the name of the device ? I am assuming this was done in the UK ? NIH

Wed, Apr 3 3:56pm · New Daily Persistent Headache in Chronic Pain

Here is my current NDPH cocktail in Buckets : this has my pain at a 4 and I work full time

Nerve Bucket
Duloxetine 60mg 1x per day
Botox – 90 days

Blood Pressure Bucket
Carvedilol 12.5mg.2x per day
Candesartan 16 mg tablet 2x per month

Acute Headache Bucket
Rizatriptan 10 mg disintegrating tablet (10 per month)

Preventative Headache Bucket
Galcanezumab-gnlm 120 mg/mL Pnij injection (Emgality)
zonisamide 100 mg capsule 1x per day

Mon, Apr 1 3:26pm · New Daily Persistent Headache in Chronic Pain

I have tried Aimovig for NDPH, I had some side effects that my Emgality does not. I do get some relief from Emgality, and my energy level is much improved. I work 40-50 hours a week still.

Mon, Apr 1 3:25pm · New Daily Persistent Headache in Chronic Pain

yes, I am going to discontinue. I have gone through 4 cycles, your husband, as we all know could respond. Hopefully, this is the case.

Mon, Apr 1 2:37pm · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

A viral infection is most likely the cause, no real know treatments

Mon, Apr 1 2:34pm · New Daily Persistent Headache in Chronic Pain

They have not been effective. Insurance is also always an issue

Mon, Apr 1 2:21pm · New Daily Persistent Headache in Chronic Pain

Every 90 days , I may stop

Mon, Apr 1 2:17pm · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Hello, my name is David I suffer from a rare form of daily headache called NDPH. I have had the same headache 24*7 for the past 5 years