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Posts (3)

Apr 30, 2019 · Erythromelalgia in Autoimmune Diseases

Thank u, I recently started using CBD oil, 3 drops under my tongue 3x's daily it has not relieved all pain but has reduced flare ups, but I will definitely try this oil. Thanks

Apr 3, 2019 · Erythromelalgia in Autoimmune Diseases

I tried the frozen gel packs & what relief but then the podiatrist said eventually it could damage my skin. I'm now using water bottles filled with water & keep in the refrigerator to stay cold, they really help when I have flare ups which is almost daily, its the ones like people use on the heads for a headache. Sometimes I put ice cubes in the bags to help them to stay colder longer.

Mar 27, 2019 · Erythromelalgia in Autoimmune Diseases

Hi hotfoot, I too have erythromelelagia it has changed my life actually turned it upside down no standing for over 20 minutes, no hot showers, no swimming I. warm pools, I spend most of my days with my feet propped up fans going day and night and sometimes run cold water in the tub and soak my feet until the burning stops. I take gabapentin, cymbalta and propananol 3x daily, if I miss one does of propranolol I'm up in the middle of the night soaking my feet. Horrible disease.