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Mon, Mar 18 2:24pm · Polymyalgia rheumatica in Autoimmune Diseases

Thanks for your reply. I am currently on 20MG of prednisone for two weeks then I am to drop to 15 for two weeks then 10 for two weeks and then hopefully I can get back down to 5mg ( where I was before this last flare up). The prednisone taper is pretty fast but that is because the doctor feels I can't stay up so high. She is hoping the Orencia kicks in and will offset the prednisone dosage. At one point a few months ago I did get down to 3 MG but I can honestly say that was probably too low. I think I may have set the flare up off with that low dosage. I just have a very hard time taking all this medicine. I feel I can out will it and be stronger than the disease but frankly I think I am losing that battle.

Mon, Mar 18 2:11pm · Polymyalgia rheumatica in Autoimmune Diseases

Hi:I am a 53 year old female , diagnosed with PMR when I was 51. We are both very young to have PMR from what they tell me. Stress can play a part in PMR, but I think genetics and environment are equally blamed. I have been tapering for the last two years on prednisone. Be very cautious to not come down too fast. It can really set you back on progress. I hope you have better luck with all of this than I have. It has been a tough 2 years but from what the doctors tell mew I have a very stubborn case of PMR.

Mon, Mar 18 1:52pm · Polymyalgia rheumatica in Autoimmune Diseases

I have had PMR for the past 2 1/2 years. When I was diagnosed I couldn't hardly walk into the doctors office. I had a ESR number of over 80. They prescribed my a very high dose of prednisone ( 80 MG) which helped get me out of the extreme pain. I have since been on a long journey of tapering down on the prednisone. Every time I get too low I flare right back up. They have tried to team the prednisone with methotrexate but no help. I have tried Embrel and Humaria but no help either. I am now on Orencia to help me get down on the prednisone. I have only been on the Orencia for three weeks so we are waiting to see what the blood work looks like next week. They tell me it may take awhile. I have such extreme pain in my hips/shoulders and knee. They have run many tests and say it is PMR. Ugh I must have the most stubborn case of PMR ever. I am only 53 years old( female) and was always so active. This thing is has stopped me in my tracks. I am a teacher and have went to part-time, but now considering retiring because the pain is just a lot. Is there anyone else out there with a similar journey. Are there any other treatments out there that have proved to be beneficial for PMR.