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Posts (2)

Mar 18, 2019 · High risk, NOT from BRCA but from typia, such as ALH, ADH, LCIS in Breast Cancer

@cindylb, bravo for following your gut. I had a bilateral, Prophylactic Mastectomy almost 7 years ago. I did NOT have breast cancer. I also had none of the currently known gene mutations, but a strong family history and dense tissue. I had the procedure done 5 years before my familial age of onset. I had skin, nipple sparing direct to implant.
My situation is out of the norm. I was back to work in 10 days and within 3 months had 90% sensation. It has not been clear sailing, unrelated health issues and capsular contraction in the right breast.
I would do it again without hesitation. And yes, the breast MRIs are no fun,

Mar 17, 2019 · Phrenic Nerve damage in Lung Health

Greetings, I am new to this group. I survived a ruptured appendix for three days and then pneumonia and sepsis in October 2014. January 2015, I was still lacking energy and no longer able to go up a set of stairs w/o having to stop. Long story short, 48% lung function. I live at a high elevation. Went on vacation at the shore. Within days, the head aches lessened, my energy level improved, nose bleeds stopped and the fog lifted. I am now determined to relocate to sea level. I am also going to look into Dr. Kauffman. Those familiar with his work, ANY idea what he charges? I know all surgeries are different, but a ballpark…… Thanks for reading. Looking forward to learning and meeting others with phrenic nerve damage.