@anniegal – thanks for sharing your story. Do you have tinnitus as part of your symptoms? With the exception of the hip pain, our systems are pretty much the same.
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Thanks for the link – I have been googling for a few days. Mine started after having mono 7 years ago and has never gone away. I have probably seen no less than 20 doctors and none of them can figure it out. Looking at some of the onset symptoms, they describe what happened to me pretty well, sudden onset of pain, lost 30 pounds in two months, etc. I am truing to find a good rheumatologist in the Fort Myers FL area
Thanks for the response. I haven't seen a rheumatologist yet. The one my pain doctor wants me to see is booked out until September. I was curious to know how this started for other people. I woke up seven years ago with my neck, shoulders, and face in spasm, and no one can seem to figure out why. The pain doctor thinks it is immune system related as the pain increases a few times a year.
My name is John and I woke up one morning 7 years ago with terrible, neck and shoulder pain. My MRI's show some arthritis at C1, and degeneration from C2 down to T1. I have had botox injects, nerve ablations, steroid shots, etc. The pain doctors I see are at a complete loss as to what is wrong. They tried sending me to Cleveland Clinic but they refuse to see chronic pain patients. I ended up going to Mayo in Florida a few years ago, they were just as puzzled as my pain doctors, and were unable to help. I recently went through stem cell injections and they didn't help with the pain or mobility either. The doctor is now thinking it is an immune system disorder as I have Psoriasis. If you don't mind me asking, how long were you in pain before you were diagnosed? And what were the onset of your symptoms