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Apr 20, 2019 · Facial Pain - Empty Nose Syndrome in Ear, Nose & Throat (ENT)

I attribute these symptoms as being related to ENS, having anxiety and a nervous disorder. I find myself shaking my legs or just having to constantly move and flex. It is hard to relax with ENS. I watch YouTube videos for relaxation, sleep meditation, healing and try and use lots of homeopathic remedies, essential oils, multi vitamins, PH water with electrolytes. I know that my body is compensating and it is hard to pinpoint everything that is going on but I can tell you that my body is in stress mode/ fight or flight constantly which is why more rest is required for repair. I also believe that the head pain in the back of my head at the base of my skull is so prominent that it minimizes some of the other symptoms of ENS. I have the dry nose, dry eyes, air intake oxygen problem too along with vertigo, ears ringing and popping. It is becoming the norm for me. Trying to survive and cope. I found a support group on Facebook, it really helps to talk to others going through these changes from ENS. I'm sure there are other diagnosis related to it but hard to get proper diagnosis and cause. With the skull base pain, I was told by ENT that it is not related to my sinus surgery and I should see my primary dr, who told me to go back to ENT who told me to go back to primary. Finally result from X ray indicated I have spondlylosis of the neck. I'm going really, I have never had any problem like that with my neck before the surgery.

Mar 16, 2019 · Facial Pain - Empty Nose Syndrome in Ear, Nose & Throat (ENT)

This is my first post to a forum. I have been in constant pain and discomfort that seems to be getting worse when I can't sleep. I had a septoplasty and turbinate reduction in 2017 to correct stuffiness and inability to breathe through my nose.Recovery for me took longer than I was told, I had to stay overnight instead on the outpatient surgery that I was told I'd have. After going home, I went to ER because I had sharp pains in my arm and heart palipitations. I complained to my ENT about my symptoms, dry mouth, eyes burning, body temperature changes, dryness in my nose, lack of mucus and when I do have it, it is extremely thick like the slime kids play with. It takes forever to get anything out. My complaints began with feeling like I had a big hollow in my nasal area, sense of suffocating and since I already have sleep apnea I didn't think much of it but it was a different kind of feeling, which occurred when I would dose off to sleep or just randomly feeling like I wasn't getting enough air, even though I could take a deep breath and my nasal passage seemed clear. I was on antibiotics during recovery as a normal procedure and I did the rinsing with budesanide, mupirocin and saline. I thought I was supposed to get stents removed but when I went for my appointment, I was told, that they didn't have to remove them because they were dissolvable packing. I didn't get a whole lot of drainage and I thought maybe something was left up there but I continued my rinses as much as 3 times a day. I have recurrent sinus infections, more than I have ever had and a feeling like my left ear was infected. I feel like all of my protection in my nose is gone. I hack/snort all day trying to clear mucus which mostly falls to the back of my throat. Long story short, I researched my symptoms and asked my Dr about ENS, he said oh you don't have that if you did you would know, everything looks fine and he suggested another surgery. I was hesitant and said I'd consider it. Before doing so, I decided I would get a second opinion which I did. I randomly selected another ENT and he said everything looked fine he didn't think I needed another surgery. In the meantime, I continued to experience the symptoms mentioned and even more. I was having stiffness in my neck and pain in the back of my head. After seeing the 2nd Dr for a while, he was now suggesting surgery, I asked for CT scan again and MRI and he said the results look fine. I declined surgery because I am afraid that they'll take what's left of my nose and he said he can't do much for me then and referred me to neurologist and another ENT at my request. I can't seem to find anyone who can give me a diagnosis. I feel like I have ENS and possible other surgery induced conditions. By the way, I almost forgot to mention that I get maybe 2-3 sometimes 4-5 hours of sleep if I'm lucky. Some nights I get a good night sleep and when I do I sleep at least 10-12 hours and feel somewhat refreshed. Lately it's been less sleep though.