Hi Colleen, thank you for responding. I’ve met someone in a Meningioma forum on Facebook who has been to the Mayo in Rochester. She has seen a neurologist there and says that the results of the MRI showed a Meningioma and that the neurologist said come back in a year for another MRI. She doesn’t know where her tumor is or the size and wanted to see a neurosurgeon and asked for a referral but “supposedly” the neurologist won’t give her one.
After being to the Mayo, I also found this odd since when I called them they made appointments for me with a neuro-oncologist and neurosurgeon immediately (I’m extremely happy with them both btw). 2 weeks later I arrived and had both of my appointments and am very happy with how I have been treated and my plan for moving forward.
After reading her story on Facebook I mentioned my experience and told her to contact the neurosurgery dept. directly. I know whatever she was doing wasn’t getting her anywhere. Now I’m not sure if this is a miscommunication between her and her doctor or this is actually what is happening, But I was trying to help her so that she can see a neurosurgeon to get more information about her situation. She was very frustrated.
It sounds like today she spoke to someone in the neurosurgery department and they are going to get back to her the beginning of next week to help resolve this issue. She called around 4:30 today and it was too late to do anything. Hopefully she gets it resolved now.
I don’t know this woman personally, I just know what she posted on Facebook and how frustrated she was with the Mayo. I was so happy with my Mayo experience that I just wanted her to have the same experience that I did.