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Mon, Mar 18 5:16am · Thyroid? Or something else? Constant internal shakiness in Autoimmune Diseases

He said that a biopsy was just about as invasive as removing my Thyroid because the nodules were small and scattered and that it might spread if it were cancer because the slices to remove a few nodules would be so small they couldn't guaranteed not slicing one with the incisions allowing it to spread. It was by far the easiest of the surgeries I have had. No recovery time really just had a balloon inserted for drainage for a few days and some bed rest. I stayed in the hospital for 3 days to make sure there weren't any complications. I am 2 years out from surgery now and I do not miss that thing at all. I have had a far easier time getting a good medication level and I am taking the Tirosent 75mg which is supposed to be the closest replacement to a natural Thyroid. The sore throat, dizziness, shakiness both internal and external, severe body aches, headaches, recurring throat infections, and goiter have all gone away since surgery. So far we have not seen any new nodules on scans since surgery. But again, surgery is not the answer for everyone.

Sun, Mar 17 10:06pm · Thyroid? Or something else? Constant internal shakiness in Autoimmune Diseases

My thyroid was enlarged (Goiter) as well for at least 2 years. My endocrinologist did an ultrasound in his office and said that the nodules were actually "the ultrasound looking through parts of my thyroid that had already been eaten away and disappeared"… I said nope and went to The Mayo Clinic in Jacksonville. They said we would wait and see what happened with the nodules as well. I said "Nope, no thank you. Take it out." The pathology came back and I had Stage One Papillary Thyroid cancer. We never would have known if I hadn't insisted they remove it. Removal may not be necessary for all patients. I am just saying keep it in mind if it goes on for a while. Dr. Casler (the department Chair) has done more than 2500 Throidectomies and I wouldn't have trusted anyone else to do the surgery.

Wed, Mar 13 8:36pm · Thyroid? Or something else? Constant internal shakiness in Autoimmune Diseases

I used to have the horrid night sweats and heart palpitations too. I take a heart regulating med called Metoprolol. I had the tilt table test at Mayo and they said I had POTS (Postural Orthostatic Tachychardia Syndrome) meaning when I adjust posturally my heart rate changes. I had the dizziness to the point where I would actually have to catch myself to keep from falling as well. Ever since I have been on the med I haven't had any issues at all. My night sweats stopped when I got on a good dose of Thyroid medication. It is a good sign for me to pay attention to because if it starts again I know my meds are off and to go see my Endocrinologist to check my levels. A random doctor that wasn't even mine stopped to look at my chart one day and asked if I had been tested for Graves. That sent me to an Endocrinologist (The only specialty I had not seen) and he ran the specific blood tests for Graves, Addisons, and Hashimoto's. I swear when I went back for the results and he said I 100% had Hashimoto's I stood up right there and did the dance of joy that I had a disease! Because it turns out I wasn't imagining things or faking symptoms. It finally had a name and if it had a name I could do something about it before it killed me. A regular thyroid level will not show you whether you have it or not. You have to test specifically for those three things. SO see an Endocrinologist and when you make the appt ask if they specialize in Graves or Hashimoto's. It makes a difference. If you have it you will start on meds that will take a little adjusting to get a good level to control everything that is happening but I swear there is an end game!.I can go outside in the daytime without dying in minutes from heat intolerance. I can work a part time job now instead of being home bound. I sleep an entire night through without waking up. I haven't fallen or had a significant dizzy spell in almost 2 years. My heart palpitations have stopped completely.Removing the thyroid is NOT for everyone. If you have HD it can be managed with medication. Mine had just been undiagnosed and active for 7 1/2 years so there was just too much damage to almost everything inside my body for me to be able to manage it with just meds. I wish you luck! I don't hope that you have HD but I hope that you have HD, (You understand that. ) Most people do not know this but your Thyroid LITERALLY tells every cell in your body what to do so when it is broken everything goes haywire in your body. If it gets to the point of removal I can point you to the best doctor at Mayo in Jacksonville, Florida, to do it. He has done more than 2500 Thyroidectomy's and is the chair of the department. I went to the top guy and I am so glad that I did. It could not have turned out to have a better result for me. First step you have to go see an Endocrinologist to have the blood test. The results can literally change your life.

Mon, Mar 11 4:38am · Thyroid? Or something else? Constant internal shakiness in Autoimmune Diseases

I had this problem as well. A neurologist diagnosed it as Essential Tremors and put me on medication to control them. Some days I could hide them really well but as the day went on they became worse and my hands would shake so badly I just opted to stay home more and more often. They felt the same on the inside as they looked on the outside. Some days I was so off balance form them that I would actually fall in my home. I was misdiagnosed for 7 1/2 years from everything to MS to Fibromyalgia and Chronic Fatigue. I went through the Mayo Clinic Pain program and even Mayo missed it. I have Hashimoto's Disease. All of the symptoms sound completely unrelated because they cover a very large spectrum. Once diagnosed and correctly medicated the tremors got much better. I opted to remove my Thyroid (my choice, not done at the physicians urging) after 7 months into treatment because leveling out my medication was really difficult after so many years of damage. It's a good thing that I did because the pathology showed Stage One Papillary Cancer that we didn't even suspect that I had. You should go see an Endocrinologist specifically one who deals with Hashimoto's Disease. One simple blood test will confirm or dismiss the diagnosis. My Endocrinologist said that he once saw maybe 1 or 2 people get the diagnosis every few months but he is seeing more and more women developing the disease. I removed my Thyroid 2 years ago and I am glad to say that the tremors disappeared completely soon after surgery. Hashimoto's Disease does not specifically list tremors/essential tremors as a symptom but I know a few people in Orlando who had the same experience that I did even thought they both still have their Thyroid. Go to the Mayo web site's search bar and type in Hashimoto's Disease you can read all of the symptoms and other information. I hope you do not have HD but if you do I assure you there is an end of the road with the struggle with the tremors and one simple blood test can change your entire life. Good Luck!