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Posts (11)

Mon, Feb 10 11:51pm · Afib: What causes an episode? What if I don't notice? in Heart Rhythm Conditions

I rarely notice when I am in A-Fib as well. Mine is naturally occuring so having had it my entire life it's a bit 'normal' for me not to notice. I am usually only aware when I have a new EKG or when my heart sort of seizes up for just a moment like it's pausing to hold it's breath and flops like a fish out of water. That one I notice. I was diagnosed with A-Fib and also Postural Tachycardia Syndrome. Mayo can do a tilt table test that will be able to record whether or not certain positions cause you to jump into A-Fib. I simply started taking the Metoprolol and was very lucky that the first med I tried works perfectly.

Fri, Feb 7 3:12pm · Thyroid? Or something else? Constant internal shakiness in Autoimmune Diseases

I had the same thing until I had been on the Gabapentin for 2-3 weeks and then it stoped and hasn't returned in 4 years.

Nov 7, 2019 · Thyroidectomy: Still have a constant cough 3 months later. Normal? in Diabetes/Endocrine System

I had serious swallowing and choking issues before my Thyroidectomy. I had a small bit of trouble swallowing after surgery for maybe a week but I did not have any coughing or choking issues and I haven't had any issue with either since. I am 2 1/2 years out from surgery now. I have some residual movement issue in the left Thyroid's muscle but nothing that causes discomfort or overall problem.

Oct 27, 2019 · Thyroidectomy in Thyroid Cancer

I will be on Tirosint for the rest of my life but there hasn't been any uptake in my Tumor marker bloodwork or in any PET Scan since. If you KNOW something is wrong even if they tell you it all seems okay, find a doctor that will listen to you. Once I got the referral to Mayo I told the surgeon day one of the consult that I wanted my Thyroid removed because it was absolutely unmanageable since my Hashimoto's diagnosis and luckily I had enough history medically documented that it was automatically a viable option for me and we scheduled the surgery immediately.

Oct 27, 2019 · Life after total thyroidectomy after papillary cancer in Thyroid Cancer

I had problems with Synthroid and Unithroid. I take Tirosint now and it has been an excellent replacement as it is the closest medication on the market to the natural Thryoid. I removed my Thyroid 2 1/2 years ago and have had no side effects at all since starting Tirosint. Ask your Endo about trying it. Good luck!

Oct 27, 2019 · Thyroidectomy in Thyroid Cancer

I have Hashimoto's Disease and had several nodules in my Thyroid. My Mayo surgeon Dr. Casler told me it was just as invasive to do a biopsy as it was to remove the organ so I opted to remove it for numerous reasons. The biggest reason being that I was having a nightmare of a time regulating my Thyroid medication. I was sick for nearly 7 years before I was diagnosed with Hashimoto's Disease and there was enough damage done throughout my entire body fro it running wild that my next natural step was to remove the organ. The pathology came back that I had Stage One Papillary Thyroid Cancer that we had no idea existed even though I had several PET Scans before deciding to have the Thyroidectomy. It took my body about 6 months to settle in to the new formulary existence no longer having the natural Thyroid and instead having the replacement medication Tirosint, which is the closest replacement to the natural Thyroid. The majority of my symptoms significantly subsided. I am 2 1/2 years out of surgery and I do no regret removing my Thyroid at all. The scar is not noticeable to anyone unless I tell them it exists. I highly recommend Dr. Casler at Mayo in Jacksonville for anyone with a Throidectomy on the horizon.

Aug 3, 2019 · Thyroid? Or something else? Constant internal shakiness in Autoimmune Diseases

I had those as well before I was diagnosed with Hashimoto's Disease. Diagnosing it is often difficult because the symptoms can be so random and seemingly unrelated and only make sense after the diagnosis. I even had the tilt table test done at Mayo and that proved to be no help other than to say I had Postural Tachycardia Syndrome. I can only say ask you doctor to specifically test for the Thyperoxidase level. Only that will tell you if it is in fact Hashimoto's. I only found out that I had it because a cat bit me and the bite became an infection in my blood within 24 hours that hospitalized me. While I was an inpatient at that hospital a doctor who wasn't assigned to my case and didn't know me happened to look at my chart at the desk and came into my room to ask if I had been tested for Graves Disease. I told him I'd never heard of it and he told me to go to an Endocrinologist. Don't give up hope for an answer. I literally stood up in front of my Endo and did a dance of joy when he gave me the diagnosis, thrilled to finally have a disease with a name because if it had a name I could do something about it and I was not a hypochondriac. Having been active in my system for 7 1/2 years before I was diagnosed it caused some permanent damage like insulin resistance but all i all I am 75% better than I was before. I hope you find an answer soon.

Mar 18, 2019 · Thyroid? Or something else? Constant internal shakiness in Autoimmune Diseases

He said that a biopsy was just about as invasive as removing my Thyroid because the nodules were small and scattered and that it might spread if it were cancer because the slices to remove a few nodules would be so small they couldn't guaranteed not slicing one with the incisions allowing it to spread. It was by far the easiest of the surgeries I have had. No recovery time really just had a balloon inserted for drainage for a few days and some bed rest. I stayed in the hospital for 3 days to make sure there weren't any complications. I am 2 years out from surgery now and I do not miss that thing at all. I have had a far easier time getting a good medication level and I am taking the Tirosent 75mg which is supposed to be the closest replacement to a natural Thyroid. The sore throat, dizziness, shakiness both internal and external, severe body aches, headaches, recurring throat infections, and goiter have all gone away since surgery. So far we have not seen any new nodules on scans since surgery. But again, surgery is not the answer for everyone.