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Katherine

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Bouton

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Mon, Sep 23 11:49am · Hearing Loss: Come introduce yourself and connect with others in Hearing Loss

I agree with Johnny3 about the value of a good support system. Check out the website of the Hearing Loss Association of America, HLAA, to see if there's a chapter near you. The Association of Late Deafened Adults (ALDA) is also a good resource. hearingloss.org and https://alda.org/.

Sat, Sep 21 7:02am · Hearing Loss: Come introduce yourself and connect with others in Hearing Loss

Colleen, I've been trying to reply to @johnny3, but the system won't let me. You're the only person I can reply to. Can you tell me what I'm doing wrong?

Wed, Aug 14 9:04am · Speech-to-text Apps in Hearing Loss

I haven’t used it in that large a group, but I have used it for smaller meetings where a lot of technical language was used. I can hear enough to know that it was surprising accurate.

Mon, Aug 5 8:04am · Speech-to-text Apps in Hearing Loss

I'm late coming to this discussion so it's possible no one is paying attention anymore. You do need a smart phone for these apps but the apps are free.
The two I have used are Google Transcribe and Otter Voice.
I bought a cheap ($50) Android for Google Transcribe. Like Shari Eberts, I wrote enthusiastically about it on my blog. I was thrilled to have any kind of speech to text app after all these years. I chose not to get phone service on the Android, however, since I already have an iPhone and phone service would have greatly added to the expense. That meant I had to have wifi to get Google Transcribe, and often it wasn't available.
Now I have Otter Voice on my iPhone and I'm impressed. You need cell or wifi. Smart Phones work fine on wifi. You can even make and receive calls by going into settings and allowing wifi calling. Unlike Transcribe, Otter Voice puts a line break between each speaker, it can identify them if you give a name (otherwise it's "Speaker 1", Speaker 2, etc.) and it even punctuates. I used it in a complicated meeting of four people recently where a lot of technical terms were used. I was amazed at how accurate the transcription was.
On the subject of live captions, Innocaption has also been life-changing for me. I have had a desk captioned phone for years, but I have never been able to use my smart phone for calls. Now, thanks to Innocaption, I can make calls anywhere and have live captions.
Innocaption and Otter Voice are free. You can pay to upgrade if you use them a lot and want additional features

Thu, May 2 4:22pm · Hearing Loss: Come introduce yourself and connect with others in Hearing Loss

@nicolet, the AG Bell Foundation is an excellent place for information about families and children with hearing loss. https://www.agbell.org/.

Mon, Apr 8 8:41am · Stem cells for hearing loss. Someone talked in Hearing Loss

Thanks. i hadn't seen that. Will read it right now!

Sun, Apr 7 7:10am · Stem cells for hearing loss. Someone talked in Hearing Loss

@lindahearing, I thought the Columbia study was on hiatus right now. Was your application accepted? It's part of a three institution study — Columbia, Hopkins and the University of Kansas. It's not stem cell though. It's tissue regeneration using their drug CGF166.
Here's a description of the trial from the government clinical trials website: https://clinicaltrials.gov/ct2/show/NCT02132130

Fri, Mar 29 7:42am · Hearing Loss: Come introduce yourself and connect with others in Hearing Loss

@joangela, depending on where you live there may be a chapter of the Hearing Loss Association of America (HLAA) or the Association of Late Deafened Adults (ALDA) near you. HLAA has chapters all over the country and most hold local meetings where you can meet others with severe hearing loss. Our chapter in New York City has monthly meetings, which often feature a guest speaker and always provide live captioning with CART. We have many members with quite severe hearing loss. Try http://www.hearingloss.org/chapters to see if there's a chapter near you.