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Tue, Jun 25 5:49pm · Polymyalgia rheumatica in Autoimmune Diseases

I have another question, while lowering the prednisone to 3.5MG I have noticed the boney bump at back of my neck is more noticeable, and the back of my neck hurts more. I am just wondering if anyone had more trouble with their neck while trying to lower prednisone,

Mon, Jun 24 4:28pm · Polymyalgia rheumatica in Autoimmune Diseases

that is super great you are off prednisone, seems odd that it can take this long. I have dropped to 3.5 mg and going to stay there for a bit before lowering it again, as I find there is more stiffness each time I lower. thanks for your info!

Sat, Jun 15 9:41am · Polymyalgia rheumatica in Autoimmune Diseases

I would like to ask a new question, I am down to 4 MG and normally try to go down by 1/2 mg every 3 weeks, however I am feeling slight pain when I bend down and walk up the stairs. Do you wait for most of the pain to go away or do you still drop down on the medication? I do not want to make things worse. I have stayed on the 4MG for 4 weeks now and really want to lower it. At what point do you know it is okay to lower the medication? Are you asking for trouble if you lower it if you are still feeling some pain/stiffness on the current level you are at or do you wait? I just do not want to do it too soon. Any suggestions? thanks!!

Sat, May 25 10:26am · Polymyalgia rheumatica in Autoimmune Diseases

Yes, I get to see the ophthalmologist this week as my rhumatoligist (all these long doctor names lol) referred me, so I will see what is going on with vision. I am concerned that the prednisone maybe has interfered with my vision, and was hoping as I am trying to taper down (at 4MG) vision would become clearer. thanks for your reply and Good luck to you too!!

Sat, May 25 10:21am · Polymyalgia rheumatica in Autoimmune Diseases

Just reading that many people are having trouble getting below 3-4 MG of prednisone (you'd think that small of an amount would not make that much of a difference, but it must!) I am down to 4 MG and doing okay, feeling some stiffness but hoping it will go away once my body gets used to the lower 4mg amount, so I can hopefully lower again. I went to the Rheumotogist this week and told him about the change in vision so he booked me into an eye specialist (ophthalmologist) whom I luckily get to see this week. Wishing you Good luck as you too try to taper down from prednisone.

Sat, May 25 10:14am · Polymyalgia rheumatica in Autoimmune Diseases

that makes sense why I struggle to take my rings off/on. Wondered why my finger seemed so much bigger now. I guess that could be from prednisone, not sure. I am down to 4 MG finally from 20 MG and find a bit more stiffness in the morning and hoping it will settle down by a months time so I can try to lower prednisone again. Wonder if remission means there is no pain at all or if you still feel slight stiffness. Very grateful though as there could be much worse we could be dealing with.

Mon, May 20 9:17pm · Polymyalgia rheumatica in Autoimmune Diseases

that is amazing., seems you can't win. I am done to 4mg of prednisone just over the weekend and I feel pain in my right leg, I am hoping the pain remains manageable so I can taper right off of prednisone as yes, it is causing me to sweat more and the blurred vision is so annoying. The reason I wrote that is so amazing that i am happy that we are all going through this not to wish this on anyone, but it is exactly the same. I am not crazy and it is not just me. I wish you good luck as you deal with the polymyalgia too. thanks for the info!

Sun, Apr 14 9:27am · Polymyalgia rheumatica in Autoimmune Diseases

Hi just wondering with taking prednisone is it common to get blurred eyesight and sweating more than normal, wondering if that is a common side effect?