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Sat, Mar 16 7:33am · I'm having multiple odd episodes that are keeping me undiagnosed. Help in Brain & Nervous System

has anyone done the cortisol and adrenal function testing? If those are normal – then you can find yourself qualifying for a different set of doctors – but I've for SURE get those done. there is a "stim test" that takes a baseline level of cortisol and then following an injection of something (they never told me what it was) they will take more blood tests to measure cortisol again. Check it out.

Sat, Mar 16 7:24am · Severe Bloating and Distention in Digestive Health

Thank you for saying that. I've had the same experience, that keeping my abdominal area warm is comforting!

Sat, Mar 16 7:22am · Severe Bloating and Distention in Digestive Health

there are several ways to test for SIBO, but the standard is a breath test. they will have you breathe into a sample bag and test the levels of hydrogen and methane. Hydrogen and methane are the gases produced by the bacteria that have taken up residence where they don't belong (small intestine) and then you are given a little cup of syrup with a mixture of sugars (all of this on an empty stomach with some fasting requirements prior to the test, and a very limited diet the day before) and then they take more breath samples every 30 to 45 minutes after that. I had this done in January (after completing a round of steroid for microscopic lymphocytic colits about 6 months earlier) and my results came back as two GI docs said "VERY" positive. so I was prescribed another antibiotic which required pre-authorization. between the time I was TOLD the Rx was sent in and when it actually WAS sent in, and then the delay while it went through the denial and appeal process, I investigated a non-pharmaceutical treatment for SIBO. I am currently following the Amy Myers MD SIBO Breakthrough plan which goes for 5 weeks. Basically, the diet involves starving the bacteria of any carbs, or sugars – which a low FODMAP diet can do as well, but also taking an herbal preparation with antibiotic properties for 30 days. I have to say, although I spend an inordinate amount of time doing food prep because of all the vegetables (all FODMAP friendly) I am feeling better day by day. I've lost a little more weight, but since I do feel better, I'm not so concerned. Just wanted to share, that if you try to research some of these things, you'll find all sorts of conflicting information. I think the best course of action it to pick a plan (I like the Amy Myers one – check our her website) and stick with one plan. Once you start mixing and matching plans – they are not as effective. Good luck!

Sun, Mar 10 10:56am · Nutritional advice needed in Digestive Health

Just an FYI – I found the Nestle ProNourish protein drink to be very well tolerated, and since it has a lot of vitamins too – it wouldn't be a bad idea to keep your nutritional level up. I ended up ordering from amazon, since i couldn't find it anywhere else. I ordered the one with no FODMAPs or dairy or gluten. I originally ordered chocolate, but I've not found it since that first time, so the vanilla is okay.

Sun, Mar 10 10:53am · Has anyone done a doctor ordered gluten challenge? in Digestive Health

After a serious downfall in the GI area and worsening health, (all probably due to the antibiotic the dentist had me take – I'll NEVER take clyndamicin again) I saw a GI doc – who wanted me back on gluten (I'd been gluten free for close to a year by then – on my own) to test for celiac. It was fun eating things I hadn't been able to eat prior to that. My test (a full endoscopy and colonoscopy with biopsies) showed no celiac, but the biopsies did find microscopic lymphocytic colitis so I was treated with budesonide for about three weeks, and then another 5 weeks tapering off the steroid. Since I was still experiencing difficulties, I had a breath test for SIBO in January and it came back positive. I'd been eating low or no FODMAPS on my own, again, based on my own research and found that helped me enourmously. The SIBO treatment that was recommended was another antibiotic, but after my last experience, I was reluctant – plus the red tape of getting it approved created almost a 6 week delay – I research non pharmaceutical treatments for SIBO and found the Amy Myers MD program. I've been following that for two weeks now, and I can tell my body is doing what it should – getting rid of the unwanted bacteria in places it doesn't belong. There are some uncomfortable (aches and pains and headaches mostly – no diarrhea which was important to me, since I've already lost a lot of weight ) symptoms from the bacterial "die-off" but over all, I'm hopeful that this treatment is going to work and I can avoid the rounds of antibiotic. The other incentive was that this antibiotic treatment apparently often needs to be repeated every 6 to 9 months, and with the cost factor – I figured I had nothing to lose by trying this other program. Just so you know also, I'd figured out I was significantly nutritionally deprived WAY back, so have been taking some very comprehensive vitamin supplements for about 6 months prior to starting the SIBO program. I'm really starting to feel better, even if my energy level is not totally back, I start some general strength and conditioning PT next month, and my husband says he thinks I'm feeling better – a little better each day. So there is hope at the end of the tunnel – I just wanted to share the rest of the outcome of my going back on the gluten diet so the doctor could test for celiac. Good luck!

Sat, Mar 9 7:43am · Hearing Loss: Come introduce yourself and connect with others in Hearing Loss

I've had a hearing loss all my life and with a sibling with a more severe hearing loss than mine, we owe the lives we have now to our parents. My mother was a teacher and recognized our hearing loss long before the doctors would confirm it. My sister went to an oral deaf school to learn to speak after she got her first hearing aid at 3 1/2 years old (I was 5 when we each got a hearing aid) and I was mainstreamed, and she joined me in being mainstreamed when she reached second grade. We never experienced the kind of bullying I've heard others have experienced, and our parents never made us feel there was anything we couldn't do. We are both retired now, so that gives you the perspective that all this was set in the 1950s which was even more a credit to our parents. Thank you James and Rita Miskimen.