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Tue, May 28 12:08pm · Auto stem cell transplant: What can we expect for timing? in Blood Cancers & Disorders

Thank you for your very thoughtful reply. We are trying to prepare as much as we can. Your info helps!!

Sun, May 26 6:16pm · Auto stem cell transplant: What can we expect for timing? in Blood Cancers & Disorders

Thanks for your reply! He was diagnosed in 2017 – went through treatment first with Rituxan and then RCHOP. Was in remission- but activity showed up with his 6 month PET scan. Docs at Mayo and Wisconsin Carbone Cancer Center strongly recommending stem cell transplant.

He handled the RCHOP just fine.

Hope you are doing well!

Sun, May 26 4:46pm · Auto stem cell transplant: What can we expect for timing? in Blood Cancers & Disorders

Hi – he has finished one cycle. He’s doing okay – except for fatigue. He’s working some while going through treatment – which is what he wanted to be able to do. The anti nausea drugs work well for him. Needless to say the whole thing is pretty stressful…

Sun, May 26 10:16am · Auto stem cell transplant: What can we expect for timing? in Blood Cancers & Disorders

My son (26) is going to have an auto stem cell transplant for relapsed lymphocyte predominant Hodgkin’s lymphoma. He is currently undergoing pretreatment chemo – they anticipate 2 or 3 rounds will be needed to get him in remission before extracting stem cells.

A question. I’m trying to get a better handle on timing – and the variables that can affect timing. For those who have been through this – what was the time period between when a decision was made for you to have a transplant – and having your stem cells removed? Were you given a window of time for all this to happen, or were you told that specific steps needed to happen in a specific schedule?

How long in the hospital?

Thank you for your insights.

Mon, Mar 11 9:21am · Coping with long term cancers in Blood Cancers & Disorders

I understand. Hang in there.

Mon, Mar 11 8:45am · Coping with long term cancers in Blood Cancers & Disorders

Sorry to hear what you’re going through. I’m hesitant to advise because my situation is different. My son has an indolent form of Hodgkins which will require long term monitoring and possible further treatment in the future. This ongoing vigilance can really wear on both the person with the disease and those who love them and care for them.

Any chance of moving closer to kids and grandkids? Spending part of the year near them? Hobbies – art, music? Part time work or volunteering – anything to try and make the focus of your lives bigger.

The best to you!

Sat, Mar 9 7:19am · Non Hodgkin's Lymphoma- Watch & Wait Approach in Blood Cancers & Disorders

Hi – I had replied to an earlier post asking if it was LP Hodgkins- I see from this post that it is. Very helpful information.

My now 27 YO son was diagnosed with LP Hodgkins in the fall of 2017. Although he did’nt have much in the way of symptoms – a significantly enlarged underarm lymph node led to the eventual diagnosis. It was pretty advanced at that point – stage 4 in spleen and bones. He went through a course of Rituxan. That reduced the extent of disease significantly. After a few months though it grew again so 6 RCHOP treatments which he handled well. Went into remission. Fast forward 6 months and PET scan shows a few areas of increased metabolic activity.

We’re now sorting out options – whether to biopsy again, just repeat scan in a few months, etc, etc.

You provide good advice re: seeking multiple opinions. We may see if we can get insurance approval for an evaluation at Mayo. As you know, because this type is so rare not a lot of experience out there in treating.

Best to you!

Sat, Mar 9 7:03am · Non Hodgkin's Lymphoma- Watch & Wait Approach in Blood Cancers & Disorders

Hi – is the rare for of Hodgkin lymphocyte predominant by chance?
Thanks.