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Apr 8, 2019 · Pulmonary Sarcoidosis: How are you dealing with it? in Lung Health

Ai have multisystem sarcoidosis… Must have had it for years. In my spine and bones. In my spleen and liver. I live in Australia.
I will be on an anti inflammatory diet for the rest of my life. Prednisone helps but try to get off it if you can after it has reduced your inflammation…it is not sustainable gives you diabetes,cataracts. Ni meds after low dose prednisone. Pain , yes. I take Tumeric caps. Paracetomol. Yep it does hurt when it gets my joints going. Waxes and wanes. Exercise with regular routine. Martindale, I was first diagnosed by skin and lymph biopsy three years ago. Also in my lungs at that time. PET scan showed the spread and extent of this disease. Please keep in touch.

Mar 11, 2019 · Pulmonary Sarcoidosis: How are you dealing with it? in Lung Health

Hello and thank you for moving me to this group.
I have sarcoidosis of liver, spleen, skin, lung and bones…spine and hip.
I would love to know what medication has helped you.
Thank you

Mar 11, 2019 · Pulmonary Sarcoidosis: How are you dealing with it? in Lung Health

Does anyone have this disease?

Mar 6, 2019 · Tapering off of Prednisone in Polymyalgia Rheumatica (PMR)

Hi Rexbeer. I have sarcoidosis a rare autoimmune disease. I come from NZ. My Mother waS aLso from NZ. Her history was arthritis and pain in her hip and lower back, my history at 59 is the same …the arthritis linked to the disease sarcoidosis. It presents the same. I was on Prednisone at higher doses which gave me osteopenia. I am on 2.5 but now getting off altogether. It did help my pain. There is significant history in our family genes certainly over the last 200 years. Kind regards. Lori