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Posts (3)

Mar 4, 2019 · Extreme fatigue with MAC in MAC & Bronchiectasis

I actually had my culture and sensitivity double checked with the Jewish Hospital in Denver. I also went to Mayo in Rochester.

Mar 4, 2019 · Extreme fatigue with MAC in MAC & Bronchiectasis

I suffered from Shortness of breath, severe fatigue, constant yawning, little energy , severe night sweats , then weight gain then severe hypothyroidism and literally severe low Gamaglobulin levels. In the quest for help and worry; I ended up in a severe depression . When I started coughing up blood and gasping, my internal medicine Dr . Demanded Pulmonologist do a bronchoscopy and Ct. I can’t even tell you how much the antibiotics saved my life. If I don’t get normal rest I will have some days that I am a little Short of breath but I had no choice and for me, I have my life back. I will always be on Levothroxin and Symbicort , IVIG monthly , but the meds were mandatory for me and well worth it in my case.

Mar 4, 2019 · MAC Antibiotics and Hearing loss in MAC & Bronchiectasis

When I was medicated for a severe MAC infection, I had 60 days of IV Amikasin , moxyfloxicillin and was also taking Ethambutol daily and Clairithromycin BID. I was automatically ordered to have my eye exams every three months or sooner if I felt I noticed a change. When I had been taking it for about eleven months , I did have some blurring in my rt eye. I had an MRI and the Optic nerve showed some inflammation. I immediately quit taking that med. I remained in the Moxifloxicllin and Clairithromycin orally for the complete one and a half years. My rt ear hearing is not as good as the left. I had no choice but the meds and I am doing really well ever since. I was very sick for three years before a bronchoscopy and C&S was finally done . Sometimes you do what you have to do to stay alive.