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Posts (81)

Mon, Jul 29 8:19pm · Mysterious shortness of breath in Lung Health

Nope. They lessen the intensity of attacks though. My doctor kind of explained it to me that the anxiety medication may "break a habit" of the SOB. So, he put me on Xanax for a while. I still get attacks though.

Mon, Jul 22 2:49am · Mysterious shortness of breath in Lung Health

My pulmonologist told me that acid can get into lungs causing inflammation and thus SOB. Also, did they check your gall bladder?

Sat, Jul 13 7:34am · Months of Chest Pain - Please help in Digestive Health

Acid reflux *can* cause acid to get into your lungs and cause inflammation and sob. Now, I've also had flutters, but they've been due to inflammatory issues. Did they rule out gall bladder, pancreas, and liver issues yet?

Fri, Jul 5 8:12am · Mysterious shortness of breath in Lung Health

Why is it called silent reflux? My doctor thought acid reflux may be playing a part of my sob as well.

Thu, Jul 4 4:03pm · Mysterious shortness of breath in Lung Health

Well, I definitely feel when I can't breathe it's pretty scary, and it creates a ton of anxiety. But because this started all of a sudden and I never have had these symptoms before, I don't think I've developed an overall health anxiety. Like you have every right to be anxious about what's going on, because right now you have no idea what's going on. All you get are answers that don't quite explain things, and because of that they can't treat the cause of the SOB.

I have not been exercising as before because with pericarditis and myocarditis they just tell you to rest, so my activity level is really low right now.

Your pain is all on the left side? Tricuspid and bicuspid valve leakage issues can cause shortness of breath because your heart's not functioning that great, but the doctors have to do a cardiac stress MRI to see that stuff. One thing I did find out is that my mom has valve leaks that are highly hereditary. Did either of your parents have any valve issues?

Thu, Jul 4 3:30pm · Mysterious shortness of breath in Lung Health

Hard trying to explain it to anyone. Even doctors. One thing that seemed to help a couple of my doctors is that I recorded myself having an attack so I could show them what I'm going through.

You have to just keep eliminating things until you get an answer. It's a nightmare. A lot of specialists, a lot of time, and a lot of scans. But if you aren't breathing right, you aren't breathing right. Your body is telling you something is wrong.

Thu, Jul 4 9:57am · Mysterious shortness of breath in Lung Health

I work for doctors. They don't know everything. It's impossible. You have to question and bring up stuff, spark their thinking, no matter how doctors look at you with that arrogant stare. It's your body. It's your life. My primary care doctor ignored me for 3 weeks when I told him I couldn't breathe and I had chest pain. He finally did an echo stress test on me, and they found inflammation around my heart. I ended up in the hospital. I could have died if I hadn't pressed him constantly. I subsequently switched my primary care doctor.

Thu, Jul 4 9:46am · Mysterious shortness of breath in Lung Health

What's Lexapro for again?

These breathing problems take SO long to figure out. I am on 5 months now. Many people here have logged years. Worst place to have
problems because breathing issues can be due to soooo many issues.

Apologies if I mentioned this already: My echo did show inflammation around my heart that they first diagnosed as pericarditis, and then months later they took a stress MRI and think I had myocarditis because my heart is now scarred. Cardiologist however isn't convinced breathing (and chest pain, tightness) problems are from heart, & pulmonologist thinks acid reflux could be causing lung inflammation which is causing my inability to take a deep breath (randomly I just get these breathing attacks where I can't get a deep, complete breath to go down, and my body only calms down when I finally am able to get a deep breath to go down and hold it for about 10-15 seconds). For me all of my breathing issues and chest pain are in the right side of my chest. And like you, I feel like something is just not right.

I am having a second opinion with a cardiologist who has experience with myocarditis/pericarditis later this month, and my primary care doctor thinks I need to have a gastroenterologist check things out next month. I have also been prescribed inhalers, they've allowed some temporary relief.

Some things I think have helped a little that may help you:

-Incentive spirometer to strengthen lungs
-Technique for when you kind of feel like you are hyperventilating: block one nostril and breathe in through nose, out through mouth
-Xanax or lorazepam
-if they haven't sent you to a pulmonologist yet, ask about an Albuterol inhaler for when you start feeling sob.

For me this all started all of a sudden 5 months ago. Never had any of these symptoms before. But I am better at this very moment than I was 4 months ago. Did they do blood tests for viruses and respiratory panels for you? Sometimes strep can be sneaky and my doctor had me do an hiv test (negative). (But I did end up with strep throat last month.)

Please let us know if you get any updates on a diagnosis!