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Apr 24, 2019 · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

@bl3ss3d @sclindajanssen
I worked for a hospital and normally I could find the CPT code if I needed it. After I posted my reply yesterday, I thought I’d do some research and make a few calls to see if I could get it. Nope. Just to clarify to anyone else besides me who didn’t know, the ICD-10 gives the diagnosis code and CPT is the billing code – an important distinction that I was confused on. @sclindajanssen – Thank you for the link on CPT codes. It was very helpful! Best wishes and prayers to all my fellow MALS sufferers!

Apr 23, 2019 · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

It’s silly that your doctor won’t give you the CPT code just because he’s not sure you have MALS. These codes are not top secret information! There are other ways to get them. Try your local hospital medical records department and ask to speak with someone familiar with coding. The manager of this department should surely know the code or codes. A general surgeon’s office should also be able to provide this information.

Apr 9, 2019 · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

@tutorgrl My pain/discomfort is exacerbated by wearing a bra. I work in a professional setting and going bra less is not an option. However, at home I rarely wear one unless we are entertaining.

Apr 5, 2019 · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

Yes. I also have a hard time eating in a seated position. My job is sedentary and often I don’t eat until the afternoon. When I go home I lay down which helps tremendously. The down side is I have no life.

Mar 18, 2019 · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

I had my tests done at a hospital in Toledo. Twenty pounds is a significant amount to lose in such a short time! What is the hold up with the referral to Cleveland Clinic? How much weight do you have to lose before they do something? I’m not a pushy person by nature but, when it comes to my health, I’ve had to learn to be. By the way, Cleveland Clinic has a service where they will review your case for a fee of about $550. You have to get your records, tests, imaging studies, etc., to them and they give you their opinion. Be persistent and don’t give up.

Mar 10, 2019 · Median Arcuate Ligament Syndrome (MALS) in Digestive Health

The symptoms you describe are very similar to my own which started a few years ago. There is much that is unknown about MALS including any congenital and hereditary aspects. I do find it interesting that your uncle has it though. Studies show that MALS is more common than they thought and some people exhibit no symptoms while others have severe, debilitating symptoms. I’ve had CT angiography with and without contrast, mesenteric duplex ultrasound to check blood flow through the celiac artery and compression of the celiac plexus, an MRA and MRV, a swallow test to check flow through the duodenum, and a jugular venogram. Have you had some of these tests done already? I have celiac artery compression syndrome (basically the same as MALS), Nutcracker Syndrome (renal vein compression) and pelvic congestion syndrome (L ovarian varicose vein). These diseases can sometimes present together. Do not let these doctors tell you this is all in your head. Remember that they work for you! Educate yourself and advocate for yourself. I am sending my records to a MALS surgeon in Connecticut for another opinion (Richard Tsu, MD). I found his name on the Facebook MALS Pals support group site. You might be interested in checking that out. I pray that you’ll get some answers and experience relief from these annoying, painful problems soon. Also, you are not alone! There are many of us.

Mar 1, 2019 · Need Awareness/ Prevention/ Research on Superior Mesenteric Artery Syndrome (SMAS) in Digestive Health

For a couple years now, I’ve had postprandial pain and cannot eat a normal size meal, poor gastric motility (resulting in regular use of laxatives), pelvic/flank pain, excessive fatigue. Over the last 8 months, I’ve been diagnosed with MALS, then severe celiac artery compression not caused by MALS or atherosclerosis, then SMA, and MALS was being considered again. Both diagnoses were ruled out and my team of surgeons were befuddled. Upon further testing, they found severe renal vein compression (between aorta and SMA). Duodenum swallow test was normal. The latest diagnosis is pelvic congestion syndrome (ovarian varicose). The surgeon wants to do coil embolization of ovarian vein and asked me about four times when I wanted to schedule this procedure. I was hesitant as, ironically, two of the other surgeons said not to do this procedure because the blood would have nowhere to go except back up to the kidney. My eating problem was lost somewhere along the way. I’m so angry, very depressed, and frustrated that this is where I’m at after dozens of tests!!! Please, if there is anyone out there that has any thoughts on this, I am all ears! Thank you for reading my long post.