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Posts (12)

May 28, 2019 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Hi Nurseheadakes, you are 100% correct, I enjoyed reading your post, yep its about making the most of a bad situation and keeping busy if possible and you just might improve unknown to yourself, keep up the positive posting, thanks Sean

May 20, 2019 · leg neuropathy in Neuropathy

Hi , I can relate to that , its all relative to the amount of activity I do during the day, I can get awful shin pain at night, I sometimes put an ice pack on my shins in bed which gives good relief. Sean

May 18, 2019 · Living with Neuropathy - Welcome to the group in Neuropathy

Hi doneuro, I have neuropathy following an inguinal hernai repair with mesh , it very much limits my activity on a daily basis, I take a small dose of cymbalta , just 30mg ,and starting versatis patches next week with the 5% lidocaine.

May 5, 2019 · Spinal Cord Stimulation in Neuropathy

Hi bkruppa, just to give you my input, I was incapacitated from 2010- 2012 following an inguinal mesh hernia repair, I had a spinal cord stimulator fitted in October 2012 in the Mater Private in Dublin, I went back to work after 2.5 years in February 2013.it really got me through a tough time and gradually improved to a point where I could again function normally , unfortunately through my own fault I re-injured the area again in November last which has grounded me again, I had my battery replaced about a month ago , which will give me more range and quiet stimulation, ie it works away in the back round .
so I am in recovery mode again, but I feel I wouldn't have had the relief I had if I hadn't taken the risk in the first place, I felt I had no choice at the time.
Regards, Sean

Apr 30, 2019 · Neuropathy caused by ilioinguinal nerve entrapment in Neuropathy

Hi Lori Renee, thank you for your reply, I am actually going to see a good investigative neurologist shortly , I had my battery replaced for my spinal cord stimulator just three weeks ago , so I am just coming around now after that surgery. it is supposed to give me more options and give me better relief so fingers crossed.
Yes I am going to try the 5% lidocaine patches again , I used them back in 2011 or 2012 , something helped me get back on my feet that time , possibly the stimulator, maybe the patches, maybe just time or maybe a combination of things.
I will let you know how I get on with the neurologist , Regards, Sean

Mar 19, 2019 · Five Things I Wish I’d Known Before My Chronic Illness in Neuropathy

you know that is great advice , the best Ive seen on here for a while, I would like to think that I am doing all of these things but I am just going to do them better, thank you jmjlove @jmjlove,

Mar 9, 2019 · Neuropathy caused by ilioinguinal nerve entrapment in Neuropathy

Hi John, no I haven't been recommended any physical therapy yet anyway, I have written to my pain specialist this weekend , describing my current condition , not sure what the next step is, but I need some treatment and fast that's for sure .

Mar 9, 2019 · Neuropathy caused by ilioinguinal nerve entrapment in Neuropathy

Hi my name is Sean, I have been struggling with Neuropathy, Small fiber Neuropathy and Ilioinguinal nerve entrapment / compression since an inguinal hernia mesh repair in 2009 .
I was pretty much incapacitated until October 2012 when I had a spinal cord stimulator installed, with time It helped me get back to work after almost two and a half years.
Unfortunately I had a set back a few months ago and am back to square one again.
The unusual thing is that I can get up in the morning feeling perfect, but once I get up and start walking and standing and putting weight on my groin & pelvis area, I start to feel soreness on that same specific point on my left groin, like a nerve is being compressed or pinched.
It is obviously inflammation at this point, I sometimes use an ice pack inside my pants which keeps the inflammation down and keeps me on my feet longer.
With continued walking and standing I get coldness and numbness down my left leg, (I think the small Fiber Neuropathy diagnosis of 2012 takes effect) with a very painful shin and leg, the feeling becomes debilitating with nausea and headache and a general feeling of unwellness.
Bed and rest are the only antidote to date, and the cycle begins all over again.
I have a very short window, maybe an hour or less on my feet, before the symptoms kick in.
I can’t wear a pair of denims with the past few weeks due to the unease and un-comfort caused.
This problem is really starting to get me down, I have no quality of life with these past few months, it is so frustrating not being able to work, go for a walk, I can’t do anything really and I’m beginning to get desperate.
I believe my problem is compression on either the ilioinguinal, genitofemoral or Obturator nerve in this area causing the inflammation and contributory problems.
I have not had any success with nerve blocks to date, I now have to look at surgery for long-term relief, I would consider neuro ablative techniques such as chemical neurolysis, cryoablation, and pulsed radio frequency (PRFL) ablation, what are your thoughts?
My one saving grace is that I was very good with the help of the stimulator and being careful from March 2013 up to my most recent mishap in November 2018, but I didn’t have this debilitating soreness and repetitive inflammation on my left groin.
I am currently doing myofascial release to free tight fascial tissue, not sure if its going to be any benefit.
This description best describes my symptoms
Obturator nerve entrapment
The main complaints in obturator nerve entrapment include difficulty with ambulation and the development of an unstable leg. In an anterior branch entrapment, symptoms can consist of exercise-related pain or groin pain. The patient may describe a deep ache in the region of the adductor origin at the pubic bone that increases with exercise; the pain may radiate down the medial aspect of the thigh toward the knee. An athlete’s ability to jump may be reduced. The weakness in these patients usually worsens with exercise.

Thank you for reading, Sean