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Oct 2, 2019 · CREST Syndrome in Autoimmune Diseases

Also now having hiccups that come out of nowhere. This is a crazy mess. Don’t know what to be more worried about!

Oct 2, 2019 · CREST Syndrome in Autoimmune Diseases

Forgot my password and just found my cheat sheet… not persistent but every now and then I have a dry tickle cough. Taking magnesium which seems to help. Burping foam is annoying.. Finally having a scope run next week. Hopefully we can find something that helps. My doctor has never had a patient with CREST before. Does low hemoglobins go with these gastric issues? All of a sudden having that to deal with too and all test so far are clear. GED next week we shall see.

Mar 4, 2019 · CREST Syndrome in Autoimmune Diseases

What medications do you take for the reflux? I started taking Dexilant a year ago, it has helped more than anything. Do you have the issue of vomiting through the night? If I eat pay 4pm, that’s an assurance, even sleeping on a wedge.

Mar 4, 2019 · CREST Syndrome in Autoimmune Diseases

No. I live in NW Arkansas. But I think my insurance is good where ever. I am trying to see a Rheumatologist. Problem is, he won’t see me until I’m ‘referred’ and after the third request, I’m tired of asking. Looking for a new HCP now. I may look into Mayo. My brother in law goes to MN for his Parkinson’s. Thank you

Feb 26, 2019 · CREST Syndrome in Autoimmune Diseases

Thank you! I’ll read these! Much appreciated! If I had to prioritize in order of most painful to least at this point,
1- severe heartburn, reflux
2- pain and cramping in fingers and toes (my digit joints are actually starting to turn, and their really tight)
3- extremely dry skin
4- Reynauds mostly in my hands, is very painful (I use a boatload of handwarmers)
5- rapid heart rate (annoying not painful)

I have hard little bumps under my skin around my ankles; busted veins and capillaries on forehead lips and back; dry eyes, especially the left). I actually asked the doctor that diagnosed it, “what is CREST?” He said he really didn’t know. I’ll keep on looking.

Feb 25, 2019 · CREST Syndrome in Autoimmune Diseases

Diagnosed with CREST 8 years ago. Last 4 years I find more symptoms are surfacing, (acid reflux, heart burn, can’t eat past 4pm, fingers and toes are twisting, Reynauds has gotten worse, heart beat is sometimes very fast, dry skin, aching joints, dry eyes, cramping muscles in hands and feet, and restless legs). Doctors just brush it off when I mention these things. I don’t want to sound like a hypochondriac, but I’m getting very frustrated about the pain and discomfort. Am I crazy, or should I keep searching for a doctor that will at least check?