Today I received the same diagnosis of SCADD. My journey has been 30 years although fortunately about 15 years ago, an internist recognized I had some form of colitis and started me on Asacol. Fast-forward to 2010-2011 when I have two C.diff infections, Asacol was replaced with Delzicol and now my insurance won't cover it. My colonoscopies in 2015 and 2019 revealed polyps which were removed, diverticulosis, and little inflammation. What was initially thought to be mild IBD with occasional flares, is now diagnosed as SCADD. Some days my insides feel raw from diarrhea and urgency. I wake up at night to have a bm. I have been nauseated and run low-grade fevers. A flare for me feels like the flu. My immediate family history includes parents with diverticulosis, four siblings and myself with auto-immune diseases, a nephew with Crohns and a niece with celiac disease.
I had endometriosis and until I had a complete hysterectomy at 34, the physicians that treated me attributed my abdominal pain to "female" problems. I think everyone has to find their own path to managing their disease. For me, I know when to switch to low fiber or just liquids. I am very cautious with OTC medications and drinking coffee and alcohol. I need to get more exercise, reduce stress and lose some weight.