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Sat, Apr 6 8:06am · New Study at UVA - repair damaged peripheral nervous system in Neuropathy

Here is the Cells Report article referenced above.

Tue, Feb 26 6:07am · CBD oil for Neuropathy in Neuropathy

I have read about the benefits of CBD oil and want to try it for my neuropathy; however, I am in the education field and am subject to random drug screenings and tests. Online, there are mixed reviews about whether you will fail a drug screening if you are using topical CBD oil. Does anyone have direct experience with this? Have you passed or failed a drug screening after using CBD oil topically? I cannot afford to lose my job for many reasons including that if I lose my job, I lose my health insurance. If I test positive, I am also subject to losing my teaching license (and thus my career). If a physician gives you a prescription for CBD oil (knowing that it does not require a Rx and that it is readily available online), does this protect you legally if you fail a drug test? I am on medication for my ADHD and have to do drug screenings every 3 months in order to continue with my prescription for that with my primary care physician as well. Honestly, because I am not a drug user, I never asked a lot of questions about the screenings and simply jumped through the hoops, but I also wonder if I test positive if they will discontinue that medication as well. So many considerations…..

Personally, I would much rather use CBD oil than other alternatives, but am concerned.

Thanks

Sat, Feb 23 6:33am · Just diagnosed....continue testing for causes in Neuropathy

Hope you get the answers you are looking for @6969

Sat, Feb 23 6:30am · Just diagnosed....continue testing for causes in Neuropathy

Thank you @jenniferhunter I examined the link and will look into that more. I have noticed and plan to mention to my neurologist at the next appt that when I shower, the portions of my feet that I have numbness or no feeling in are actually white (a very stalk white). The portions that have feeling in them have a healthy color and are almost reddish, but the others are a stalk white. For now, my fingertips do not show this color pattern when in the shower, but the numbness has just begun in my fingertips whereas I have been experiencing numbness in my feet for several years now.

Thanks for sharing this information. I really appreciate it.

Wed, Feb 20 9:03am · Just diagnosed....continue testing for causes in Neuropathy

Thanks for this suggestion @artscaping I will look into that treatment. I read a little about essential oils and want to explore that more. Also glad to know that the CBD oil is working as well. Thanks for all your helpful suggestions. I hope you are free of suffering, well, and happy.

Wed, Feb 20 8:55am · Just diagnosed....continue testing for causes in Neuropathy

Hello @ irmaida thanks for your reply. Sorry to hear that you are in so much pain. I have the tingling and numbness in my fingers, feet, and legs, but luckily not the pain. Thanks for the tips on how you manage the pain. Glad the ice packs are helping. I read online about heat and heating pads, but it seems that might not work for you.

So sorry to hear that you did not find answers. That is difficult and disheartening. I am also trying to educate myself and see if there is anything I can do to slow the progression, if that is possible. I do hope this will pass and everyone experiencing this can find the answers and relief we are all looking for.

Thanks for your responses.

Wed, Feb 20 6:11am · Just diagnosed....continue testing for causes in Neuropathy

Thanks for your reply @ericvnelson. There are a lot of similarities in our cases. I am 53 and although I was just diagnosed, I have been experiencing numbness and loss of feeling in my feet for about 10 years. The numbness has progressed to my knee on my left side and my ankle on the right. Recently, I have also begun noticing numbness in my fingertips and also that the areas affected by the neuropathy are cold – severely cold and they take hours to warm up. I have also had balance issues for years, but it has gotten much worse lately. I am not as active as you, but have done yoga off and on for years and am currently working. My neurologist also suggested that I try Tai Chi and swimming. Online, I began reading about acupuncture for PN, but it seems to be mainly for the pain and I am not experiencing pain. I have also read about deleting glutens and refined sugar from your diet, but have not begun doing that. My neurologist told me that there was no treatment and told me the only thing I could do was live a healthy lifestyle – eat right, eliminate alcohol, don't smoke, exercise, and eat right. I hope you continue to be positive. For me, meditation and mindfulness help me with the positivity and the stress in my life. Agree that it is difficult to remain positive. Wish that there were more that could be done for all of us. I have not heard of egoscue, but googled it and will read up on that.

Thanks again for taking the time to reply and share your story with me. Hoping you find some suggestions that are helpful.

Wed, Feb 20 5:37am · Just diagnosed....continue testing for causes in Neuropathy

@johnbishop .
Hi John. Thanks for the welcome. Sorry if I posted in the wrong location.

How I got diagnosed….. I mentioned to my primary care physician that I had experienced numbness, tingling, and lack of feeling in my feet for the past 10 years or so, that I had a strong family history of PN (all my blood relatives have it except my son has not been diagnosed yet). He did an X-ray of my hips and lower back and stated that both looked normal and referred me to a neurologist. On the first visit with the neurologist, he asked questions and did a basic exam and then scheduled me for nerve conduction and EMG testing. Based on those tests, he diagnosed me with PN. Also, I have had severe leg cramps for years which I did not realize might be related to the PN.

I return to the neurologist in late March and have been trying to educate myself since my diagnosis so I know what questions to ask when I go.