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Thu, Feb 14 1:58pm · Non hodgkins lymphoma spleen in Blood Cancers & Disorders

Thank you so much for sharing with me what's going on with you. I had pain in my stomach and I was anemic so a Ct scan was done. My spleen was enlarged so I was sent to see an Oncologist. He ran a JAK 2 blood test and he said if it came back negative that he would do a bone marrow biopsy. It came back negative so he did the biopsy and it showed SMZL. This is so new to me and because it's so rare, I feel alone with it. I'm not sure I like my Oncologist either so that doesn't help.

Thu, Feb 14 1:48pm · Non hodgkins lymphoma spleen in Blood Cancers & Disorders

Thank you Jackie. I would love to go to the Mayo clinic. I will check into it. Thank you so much for your advice. Happy Valentines Day to you also. Prayers for you at well.

Thu, Feb 14 6:34am · Non hodgkins lymphoma spleen in Blood Cancers & Disorders

Hi Jackie, I was experiencing some of the symptoms prior to the iron infusions. I had fatigue and pain but it's gotten worse but I didn't run a fever. My Lymphoma is very rare, and I heard that some Oncologists don't know a lot about it. I will keep you updated as to what he says.

Wed, Feb 13 10:37am · Non hodgkins lymphoma spleen in Blood Cancers & Disorders

I was diagnosed with SMZL in December of 2018. I've had several iron infusions but nothing else. I am starting to have some pain where my spleen is but my biggest problem is hurting all over my body and chronic fatigue. The last week or so I have been running a low grade fever on and off. Does anyone else have those types of symptoms? Since this is so new to me, I'm not sure if it's something else or related to the SMZL. My next visit with my Oncologist is next month and I will talk with him also. Thank you