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Fri, Aug 2 12:11pm · Interstitial Cystitis - I would like to connect with others in Autoimmune Diseases

Is there anyone on here who has interstitial cystitis? Was your onset sudden and how is it possible to live your life every day with such an awful pain? Does anything help?

Fri, May 24 8:52am · Early or Extra Heartbeats; PVCs in Heart Rhythm Conditions

Recently diagnosed with PVCs and my cardiologist has me taking 10mg propranolol twice per day. I’ve been on the twice per day dose for 4 days now. The medication is definitely reducing the strength with which the PVCs occur and for that I’m super grateful. However, I noticed my chest is a bit tighter since starting the medication and my breathing is a bit different as well. Neither sensation is overwhelming but it’s noticeable. I’m wondering if these feelings are just part of my body adjusting to the medication. Any input would be appreciated. And of course, I’ve already messaged the cardiologist as well just to be safe. But it’d be nice to hear what other people have experienced if you don’t mind sharing your own stories. Thanks!!

Mon, May 6 11:20pm · Early or Extra Heartbeats; PVCs in Heart Rhythm Conditions

Thank you so much for responding. I’m definitely struggling with the psychological aspect for sure. I feel as though my peace of mind has been taken away from me and I have no control over my own body. I’m desperately searching for solutions to problems and just trying to understand what is happening in my own body.

Mon, May 6 7:01pm · Early or Extra Heartbeats; PVCs in Heart Rhythm Conditions

Recently diagnosed with PVCs and I’m getting really frustrated and scared at the same time. Taking 10mg propranolol twice per day which does help cut down the intensity. But I’ve also noticed with most PVCs I’m also feeling the flutters in my upper abdomen as well as my throat. I’m going to see my doctor in a couple of weeks but was wondering if anyone else has had the same expression of symptoms. Thanks a bunch!!

Sat, Apr 6 10:46am · PVCs and Coronary Artery Disease in Heart Rhythm Conditions

Thank you so much for your thoughtful response and your encouraging words. I am so appreciative of your reply. Many years ago I eliminated coffee, alcohol, etc from my diet. I’ve had these palpitations for several years but no one could figure out the issue so I tried everything I could to reduce possible irritants. Now I know they are PVCs. The problem compounding the PVCs which I’ve read are generally benign on their own is that I also have coronary artery disease, specifically a build up in my LAD artery. Last evening the PVCs carried on for an hour or so with fluctuations from normal rhythm to every third beat a PVC (I can see it on my EKG output). I’m quite scared and feel completely helpless. I don’t know how people can carry on in their days when the heart beats so erratically. I’m afraid to move around, eat, talk or do anything that might jostle my heart for fear it’ll trigger another PVC. I hope the doctor has some encouraging words on Tuesday.

Fri, Apr 5 12:01am · PVCs and Coronary Artery Disease in Heart Rhythm Conditions

Thank you so much for sharing your experiences with PVCs. I’m meeting with my cardiologist Tuesday to further discuss my situation. I truly appreciate you sharing your story. Right now I’m just scared because they feel absolutely horrible when they happen.

Wed, Apr 3 8:31pm · PVCs and Coronary Artery Disease in Heart Rhythm Conditions

I’m a 46 year old female who was diagnosed last year with a 30-50% blockage in my LAD. The treatment is Zocor at this time. Today I was diagnosed as having PVCs…something I’ve been trying to figure out for the last 4 years and it was finally caught on an EKG. These PVCs are terrifying and I’m looking for some insight from others who have the same issue. How do you manage through the PVCs and not let the unsettling feeling overtake your mind. I feel like my peace of mind has been completely stolen from me and at 46, it seems the road ahead is going to be a long one.