Thank you Kathy.
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I was on Arimidex for over a year and a half, and finally the side effects became intolerable for me. I understand this is not true for everyone. After 9 weeks off the Arimidex, my Oncologist switched me to Exemestane . After 2 weeks, the side effects of the Exemestane became similar to the Arimidex. Again I'm taking a month's break and have an appointment with my Oncologist in December. I'm 75 and trying to decide if I want to stop the drugs altogether or try Tamoxifen. I have osteopenia and moderate to severe arthritis in multiple places. I'm hoping my Oncologist can help me with my decision.
Mon, Nov 11 11:30am · Portal vein thrombosis (PVT) after breast cancer treatments in Breast Cancer
Thank you, Cindy. This site has helped me so many times to understand that It isn't just me reacting to these Estrogen blockers. There is so much helpful advice and relating of experiences. A huge thank you to all of you.
Mon, Nov 11 11:24am · Portal vein thrombosis (PVT) after breast cancer treatments in Breast Cancer
Hi Trixie, I know you are taking Exemestane, I meant when you said, "The only way you'll know is to try it", did you mean that i should try Tamoxifen? Sorry for the confusion.
Mon, Nov 11 9:55am · Portal vein thrombosis (PVT) after breast cancer treatments in Breast Cancer
Thank you for your reply, Trixie. Do you mean try Tamoxifen? Even my Oncologist said Letrozole is similar to Arimidex. I do take a large dose of vitamin D daily and I have for years. I'm really glad to know you are doing well with Exemestane.
Mon, Nov 11 9:35am · Portal vein thrombosis (PVT) after breast cancer treatments in Breast Cancer
I've written here about taking Arimidex for over a year and a half, and finally giving it up due to all the side effects mentioned by other members of this group Everything hurt, joints, hands, feet, and I just felt OLDER. I took a month or more off and my Oncologist switched my medication to Exemestane. After two weeks or so I had a severe bout of neck and head pain. I'm in Physical Therapy now, and again my Oncologist has taken me off the drug for a month and I have an appointment to see her in December. Trixie, I'm so glad to know this drug is working for you. I don't want to go on Letrozole because from all I've read here and online, the side effects are the same as Arimidex. That leaves Tamoxifen. Oh, what to do!
@1bohawk– I posted on August 9th that i was getting new hearing aids. My audiologist is wonderful, and very lenient about trial periods. I've tried Resound, Signia, and currently Phonak. Resounds were OK, although I did have some issues with them and they were not right for me. I hated Signia for a lot of reasons. Phonaks are great for me, and I plan to go ahead and purchase them. I think it is a very personal decision and a brand that is best for one person might not work for another person.