I’ve had pulsatile tinnitus for 10 years. Use http://www.whooshers.com for up-to-date medical info. and support.
There are a few MDs who are very knowledgeable about p.t. and you can find them using that site.
There’s a Facebook group, but I don’t use Facebook, so don’t know much about it. Most of us have found ways to deal with it, including me. Start with the Whooshers site. Hope this helped! Lisa