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Posts (387)

7 hours ago · Arachnoiditis: Trying to find a specialist in Spine Health

Please research taking Kratom. It is a powdered leaf coming from SE Asian trees. Buy the slow strains of it at Happyhippoherbals.com Add it to water, and swig down as fast possible, because it is lousy tasting. However, it is the one thing that does help nerve damage pain. It makes you feel mellow, and takes away all pain for about 4 hours or so. Not all Kratom is alike. The wrong strain may not work, and there is lousy stuff on the market. So shop Happyhippo. The stuff is addictive, so take it every other day. I will tell you more about it if you are interested. True pain relief. That is why people fight for Kratom. Lori Renee

1 day ago · Kratom for PN pain in feet? in Neuropathy

Hi, just to add a bit of info because I do use Kratom, and would not be without it. The company I buy it from is approved by the American Kratom Association, meaning it is free of pesticides, salmonella, contaminants, etc. Any deaths associated with Kratom have been young adults who mess with it. That means, if three grams work, maybe 10 would be better! Or they mix it with other drugs, marijuana, etc. Used responsibly, it is a fabulous pain killer. That means, you do not use it every day. You use it sparingly, so there is no chance of addiction. I use it about 2 to 3 times a week. I use it when the pain is excruciating only. You find the LEAST amount of it, to get the results that feel right for you. For me, that is 4 to 5 grams per each time I use it. The worst, is that it is vile tasting in the powder. I just emailed the company to ask about their capsules, because the stuff is gross when swigged down. However, I will take a few seconds of gross, over hours of pain. The stuff works. It is miraculous. Be responsible. Lori

3 days ago · Testing for Neuropathy in Neuropathy

kiro0001 Hi Kia, I really would go to other doc if I were you. What you are going through just does not seem right, and I agree that it may be motivated by making money. Horrible. Find another doctor, for sure. Keep us all informed. Lori

5 days ago · Testing for Neuropathy in Neuropathy

kiro0001 Hi Kia, Never heard of MRI's first, but I could see it if docs really do suspect something besides the neuropathy. I don't think this has to be the order in which to do these tests in, though. I hope you are OK? Lori Renee

Tue, Jan 14 10:46am · still working with small fiber neuropathy in Neuropathy

@sswartzki I have not tried IGIV. Know nothing about it. Just started Low Dose Naltrexone, which is helping my foot pain. I have never heard of hair falling out from neuropathy. Are you sure it is from this? Are you on any meds that could do this, or any diet changes that could effect hair? You are the first person I have heard about who has this from neuropathy. I do understand though, that it is the least of your problems. Lori

Tue, Jan 14 10:39am · still working with small fiber neuropathy in Neuropathy

@swartzki Hi, it's Lori. I am 68, and retired. There is no way I could work with my foot neuropathy. I would have had to claim medical disability had I had this neuropathy when I was working. Mine started immediately after breast cancer surgery, almost 2 years ago. Neuro docs checked for an auto immune response to the breast cancer tumor, but the test showed nothing. Perhaps the radiation caused the neuropathy. I will never know. God awful. Successful breast cancer surgery, and now, neuropathy. Who woulda figured? I will look into the Tramadol for the flu like symptoms. Thanks much. Lori Renee

Mon, Jan 13 10:53am · still working with small fiber neuropathy in Neuropathy

Hi, I also experience flu like symptoms all morning, and then, it seems to disappear. What never disappears is foot weakness, and that is very disabling. I try to fight thru it, and get on the tread mill and walk. But the weakness prevails. Neuropathy sucks. What can I say? Lori

Mon, Jan 13 10:49am · Apparatus for Neuropathy in Neuropathy

@artscaping Hi Chris, You wrapped it up! The crazy decisions we make all day long is in itself, exhausting. Nothing is just natural anymore. Nothing can be taken for granted. I never would have believed our lives would have came to this. And at some level, pain becomes boring!!!! We just want to think about something else. We want to have normal, healthy, stimulations; not this madness! So, I am going shopping. May not be able to have the strength to stand in line to buy anything, but still; I am going shopping! Hi Ho, Hi Ho………OY!!!!!! May you find the goodness in your day. Lori