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Posts (9)

Mon, Apr 1 1:59pm · Cerebellar Stroke - experience/treatment/recovery in Stroke & Cerebrovascular Diseases

Hi Placy Hall. Yes you’re lucky! I had stroke 9/30/2018 I was in hospital for 2 weeks and 2 weeks in rehab, I Right side a was affected. But I have caverneus malformation in brain stem. That’s very scary because I can have other stroke at any time,because is in brain stem. I can’t have a surgery because is very dangerous😞 I still have the right side numb. When my husband scratch a hurt like is fireball over this side, my memory is not good, now I have fibromyalgia is bad. Sooo yes ones again you’re very like. Sometimes I don’t know where I’m, forget the water running, loosening everything ! I have on my hands. I’m scare living with the unknown, that at any time I can have other stroke or not. Good luck to you😊🙏🏻🙌🙏🏻

Tue, Feb 26 11:34pm · Cerebellar Stroke - experience/treatment/recovery in Stroke & Cerebrovascular Diseases

Hi how are you? My caverneus is in brain stem. I had a hemorrhage on 9/30/18

Fri, Feb 15 11:51pm · Cerebellar Stroke - experience/treatment/recovery in Stroke & Cerebrovascular Diseases

I feel a bit better but my dr, told me a will take time to get better, TG now I can walk slowly, help my husband with cooking, laundry I get in better, only problem is my insomnia is bad, and I have very bad pain in my joints n muscles, get tired very easy, I can not drive or be on my own

Fri, Feb 15 11:45pm · Cerebellar Stroke - experience/treatment/recovery in Stroke & Cerebrovascular Diseases

Hi Yvonne! I’m Placy 50 years old, I had stroke 9/30/2018

Wed, Feb 6 9:57pm · Cavernoma in Stroke & Cerebrovascular Diseases

Good Question! I had similar occurrence with me I have caverneus malformation of brainstem. I was I hospital for a month. Now I’m sacare of everything, I cannot sleep, have bad anxiety and panic episodes. Do you feel same as me ??

Sun, Feb 3 2:11am · Cavernoma in Stroke & Cerebrovascular Diseases

Me Placy Hall! The neurosurgeon told me caverneus malformation in brainstem, same as Cavernoma

Sun, Feb 3 2:07am · Cavernoma in Stroke & Cerebrovascular Diseases

Hi my Placy Hall 9/30/2018 I was diagnosed same problem as you. Few months later I had a visit with neurosurgeon and he told me to wait for a year to have n other MRI because I still have blood in my brain, and surgery was out of the ? Because a was very dangerous. But I have headache and nausea, my body hurt and I cannot sleep well. Do you think they can help me ? I’m sooo over it feeling bad every day.