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Thu, Jan 16 9:36am · Cerebellar Stroke - experience/treatment/recovery in Stroke & Cerebrovascular Diseases

I wanted to give an update on my recovery. My stroke occurred June 7, 2017. My recovery has been great. I still have slight dizzy spells if I move certain ways. The Neurologist said that was probably due to the restricted blood flow to the cerebellum and would not go away. It is very minor. Stairs still give me pause. I just make sure I pay attention when going up or down and use hand rails.

Last Friday evening I was feeling great. When I started to go up stairs as soon as I took the first step up it felt like I was standing still and the house moved around me. It was extremely weird and nothing like I have ever felt. Each step was the same. I had to hold on to the handrail with both hands and take it one step at a time to make it up. After I made it up I sat down and had a drink and it went away. The rest of the evening and the next day I was fine. However, as evening came we were going to dinner with friends. I stood up form the chair and it was back. Stairs were the same. I had to hold on with both hands and take them one at a time. It wasn't like the room was spinning. It was like being in an earthquake.

My husband took me to the emergency room and they admitted me. Frankly I was embarrassed to go there. The symptoms eased up while in the ER until they were gone. I felt it was probably just sinuses. They all told us we were absolutely correct in coming in to be checked. I was put on the telemetry unit and had a battery of tests, a cat scan, an Echo Cardiogram, EEG, BARP, two MRI's and and MR/A.

It was vertigo, probably caused by a crystal attaching to a hair in my inner ear. However, what I was on cloud nine about, was the scans were compared to my previous scans and nothing had changed. My heart was great and there had been no other issues with my cerebellar, or any other part of my brain.

All of the doctors, and medical staff assured us that it was the correct call to come to the ER when this occurred. They also said in the future should I have another event like this, I should go to the ER immediately to get it checked. As one pointed out, I have multiple sinuses but only one brain.

So anyway, that was the excitement last weekend. I just thought I would pass on my experiences.

Oct 21, 2019 · Cerebellar Stroke - experience/treatment/recovery in Stroke & Cerebrovascular Diseases

I totally sympathize with you. I believe outside of motor control issues, most Doctors have very little knowledge of the impacts Cerebellar strokes have. I finally went to Johns Hopkins for a "Neuropsychological Evaluation". It was a standardized comprehensive battery of tests checking memory, logic, et al. Besides testing me, they also interviewed my husband. At the beginning they stressed that they would not be able to tell me what I lost, but rather could ascertain my neurologic health compared to my peers.

They identified a number of areas, primarily they recommended a sleep study, and treatment for depression. The sleep study was negative, but the treatment for depression has made a huge difference in the quality of my life.

The other fantastic thing coming out of this is I now have a solid and comprehensive benchmark. This testing is very standardized so in the future I can be tested against my own benchmarks. That is comforting to know.

I don't know where you live but you or your Doctor should be able to find a facility that can perform the testing on you. Not any facility can do this since it requires specific training on how to give the tests.

I hope this helps.

Oct 9, 2019 · Cerebellar Stroke - experience/treatment/recovery in Stroke & Cerebrovascular Diseases

It has been awhile since I have posted and thought it would be a good time to do so. My stroke happened in May 2017 due to complications from cervical fusion surgery. I am mostly back to myself. If you asked my friends or husband they would tell you I am back completely. I know I still have residual problems some of which may pass and some I will just have to learn to live with. Most are minor annoyances, some had a larger impact on my life.

My Doctor started me on antidepressant meds that have worked wonderfully. I had gradually shut down after the stroke and no longer wanted to do my hobbies. I was very short with friends and really wasn't enjoying life like I should have. That has almost all gone away. I feel like I am waking up again. Things just seem brighter. I want to pursue my hobbies again. It is amazing, and I am very happy that this is being addressed.

My short term memory is still hit and miss. I find I search for words much more now than I did prior to the stroke. Some of this was probably due to the depression.

If I am by myself and working on my laptop, I am great. I may have to write more notes to myself, but I can still draw my creations in CAD before I build them. However, when I am in a group, I sometime find I am a bit slower than some. If a person rattles off a series of questions, I start to feel like I am drowning a bit. It is weird. Sometimes I just need more time to answer a question. It is not like I forgot the answer to their question, My brain just has trouble finding the path to where it is stored. I think this is very gradually getting better.

Physically, I still get dizzy spells. They do not last long but I never know when they are going to hit. Sometimes I will find I turn a little more than I planned when walking. Not much, just off setting. I have learned to reach out for support when this happens, This I think I may have to live with. I also notice when riding in a car as a passenger, sometimes I feel cars are coming much closer than they are. When this happens I tell myself that this is my brain's problem and the driver knows what they are doing, but I still cringe regularly when a car changes lanes ext to me. I think this is a depth perception issue.

I still have urge incontinence but I am seeing a Urologist and am making some headway in this as well.

Otherwise I am doing great. I have lost a lot of weight that I needed to, and I am starting to engage with all the things I used to love doing. I have a very supportive husband who is letting me reengage at the pace I want to.

So all in all I am very happy with my progress. Sorry to be so long winded.

Bill

Aug 10, 2019 · Falling after recovery from stroke in Stroke & Cerebrovascular Diseases

No falls recently. My progress has been good. I have learned that some movements will get me dizzy. One such movement is looking down while I get up from a chair. This always makes me dizzy for some reason. It lasts only seconds so I hold till it is over then continue.

I also still am very careful on stairs. I do not feel totally confident going down them. So I use handrails and take my time. Someone here said their body had forgotten how to counteract a misstep. I think that sums it up well for me. I think this is one area that is improving but it is slow to retrain the brain.

One outcome from all the testing that was done on me after the stroke was discovered was a diagnosis of depression. I started taking Wellbutrin XL for this a couple of months ago and I can see a real difference in my outlook. I have started to pick up projects that I just didn't have the energy to do before. My Doctor is working with me to ascertain the appropriate dose.

I don't think the depression was from the stroke. I can look back and see this has been going on for a long time. However, I think the stroke worsened it. I talked to my doctor about it months before I knew I had the stroke.

So my bottom line is I see great progress. It is going slow, but that is partly me. I want to tackle one thing at a time.

Jul 5, 2019 · Cerebellar Stroke - experience/treatment/recovery in Stroke & Cerebrovascular Diseases

One thing I would like to mention. Perhaps it is the wrong board, but either the stroke or more probably the medicine regime I am on now have given my dry mouth at night. I tried various lozenges and gels some worked and some didn't, but I hated the taste of all of them. However, I started using Fisherman's Friend throat lozenges. It is not for dry mouth but it works as well if not better than the dry mouth gel. It is sugar free so it is tooth friendly. If I wake up with dry mouth at night, I just chew on one of the lozenges. This breaks it up and actually loads the teeth with it. So it gradually melts as I sleep.

So if you have dry mouth and hate the tastes of the various products for dry mouth out there, pick up a pack of Fishermans Friend. It will be with the sore throat section.

Jul 5, 2019 · Falling after recovery from stroke in Stroke & Cerebrovascular Diseases

Knowing I get a dizzy spells I try to ensure I have something to grab in case I do get one. These are very transitory, think seconds, I think I have mainly adjusted to my new reality. All that said, I did fall a short way down our stairs two days ago. I was going down stairs with my hands full and missed a step. Luckily I was only two steps from the floor so nothing was hurt. I did scare the crap out of my husband. I just have to be more careful when using the stairs.

Jul 5, 2019 · Cerebellar Stroke - experience/treatment/recovery in Stroke & Cerebrovascular Diseases

June 7th I passed my two year anniversary of the stroke. I am doing pretty well. I still get dizzy if I move my head certain ways. The Vascular Neurosurgeon felt this was probably the result of the blood getting to the cerebellar from other arteries. So that is probably not going to get better. However, the dizziness lasts only seconds.

At this point I have gone through a lot of testing to see exactly where I stand. Physically I am doing much better. I have lost weight and feel I have more energy.

Probably what made the greatest significance to me, was getting on an antidepressant. At some point after the stroke, I started falling into a depression that just made me not want to do anything. My world had become pretty small. That has changed. I am not 100% there yet, but it is certainly getting much better.

May 12, 2019 · Falling after recovery from stroke in Stroke & Cerebrovascular Diseases

Yes. Left cerebellum. At the time I blamed it on the pain drugs from the surgery.