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Sat, Apr 27 7:12am · Can high red counts just be normal? in Blood Cancers & Disorders

For clarification, I don’t have a diagnosis at all yet.

Fri, Apr 26 10:31am · Can high red counts just be normal? in Blood Cancers & Disorders

Hi. Is it possible to have 49.6 hct, 16.2 hb and 5.38 rbc (all over top of ranges) and epo of 3.6 (bottom of normal range) and not be at risk for clotting or stroke? I’m female, 47 and jak2 negative. Others with a PV diagnosis are to keep hct under 44. How can it be ok for me to hover around 50? Thanks for any insight offered.

Sat, Feb 23 4:22am · Polycythemia Vera in Blood Cancers & Disorders

I came back negative for jak2 v617f, CALR and MPL. I’m waiting for directions on next steps.

Tue, Feb 19 5:58am · Polycythemia Vera in Blood Cancers & Disorders

For everyone’s info, I messaged through the patient portal and was told up to 10 days for Jak2 results. But the nurse suggested I check in at 7 days in case it is available. Wonder why it takes so long.

Mon, Feb 18 5:47am · Polycythemia Vera in Blood Cancers & Disorders

@simple27 I took my promethease jak2 variant information with me to my Dr appointment. I’m showing three areas of increased risk. I’m now waiting for Jak2 lab results. Blood was drawn last Thursday (feb14) at Mayo, any idea on the turn around time for results there?

Fri, Feb 1 12:51pm · Polycythemia Vera and Nutritional Ketosis in Blood Cancers & Disorders

I am suspecting I'll be soon officially diagnosed with PV. I'm JAK2 and blood numbers trending up over the past 18 months. Dr ordering another set of labs today. I am already on a ketogenic diet and do intermittent fasting. Occasionally 24 hours but almost always a 16-18 hour fast daily. Originally began doing that to help my brain as I am also APOE4 positive (high risk for Alzheimer's). Any ideas if fasting and autophagy are beneficial to PV?