About

Member has chosen to not make this information public.

Groups (1)

Posts (6)

Mon, Mar 25 9:50am · Living with Neuropathy - Welcome to the group in Neuropathy

Hello again. I forgot to mention that I tried to be seen at Mayo in Rochester, but they would not give me an appointment.

Mon, Mar 25 9:46am · Living with Neuropathy - Welcome to the group in Neuropathy

I’m just beginning to suffer with constant burning
in my feet. Will be seeing my family practice doc on Friday and then I imagine a referral to a neurologist. Gabapenpin has already been suggested. Can you share what side effects you have experienced?
Thank you so much!
Victoria

Mon, Feb 4 2:00pm · Living with Neuropathy - Welcome to the group in Neuropathy

Hello John, I don’t know if this is beyond your scope of mentoring, but I am trying to find a starting point for coming to the Mayo Clinic for testing and a complete medical workup for the diagnosis and treatment of my Burning feet. I’ve had it for years, but only at night and it was very manageable with cool fans and some icing. It did begin to worsen over the last 2-3 years and I talked to my family practice doctor with concerns. He never did any testing and just said I had PN, there was nothing I could do about it except take Gabapentin. It gave me terrible side effects. Since the first part of January it has drastically accelerated! It is constant burning in the bottom of my feet, becoming much worse with activity! I have never seen a neurologist. I live in Colorado, but after researching the best neuropathy hospitals, the Mayo is where I want to come! I just don’t know how to begin. I have Medicare and Tricare for Life as my insurance, but I don’t know if I need a referral from a doctor in Colorado before I can come to Mayo or if the doctors at Mayo will even see me. I’ve tried calling a couple of numbers, but still don’t know how to proceed. Can you help with some contact information and/or advice on how to begin? Thank you so much. Victoria

Mon, Feb 4 11:30am · Does Vitamin B-12 help with neuropathy of the feet? in Neuropathy

Hello John. Thank you for sharing these articles. Very helpful! Can you share information on other supplements you are taking for PN?

Wed, Jan 30 6:15pm · CBD oil for Neuropathy in Neuropathy

I’m so glad to find this post. I am experiencing extreme burning in my feet from ideopathic peripheral neuropathy! I am very reluctant to start Gabapentin, as my PCP has prescribed. I live in Colorado so I can easily get CDB cream! Can you suggest a name brand and what exactly I should be asking for? Thank you so much!