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Posts (4)

Mar 14, 2019 · Constipation after FMT in Digestive Health

I would call your doctor right away. You could have a blockage. Last June my son was in the hospital, part of his testing was a Colonoscopy. He had been on complete bed rest could only get up to sit on the commode beside his bed with the help of a nurse. Was on a liquid diet. They sent him home two days after his colonoscopy knowing he hadn’t moved his bowels. He went back in the hospital a day and a half latter. He was in the hospital for another week. His bowels were blocked. It took the surgeon coming in and going off on the hospital doctors before they finally gave him an eneima. He had just been diagnosed with Primary Sclerosing Cholengitis and Crohn’s disease. If you have constant pain this needs to be taken care of immediately.

Mar 14, 2019 · Looking for others with Pituitary Adenoma in Brain Tumor

I live in New Jersey my Endocrinologist and my Neurosurgeon are with different hospital systems. My Neurosurgeon is the Head of Neurosurgery at Cooper Hospital and my Endocrinologist is with Inspira Hospital. Both seem to be well versed in their fields and came highly recommended. I had high blood pressure before the diagnosis as it runs in my family. I’m overweight but my weight has remained stable though out. The Endocrinologist has told me that since I’m neither gaining or loosing weight we won’t discuss me trying to loose right now. I have very little appetite and on most days only eat one meal a day. I’ve started to have issues with my heart and am waiting for results from an Echocardiogram and a Stress Test. My Cardiologist said my EKG didn’t show any signs of a heart attack but there were several abnormalities. Heart disease, diabetes and cancer all run in my family. I also have a tumor on my Adrenal gland and cysts in my liver and kidney. Glad to hear your husband is doing well, thank you for the prayers. I will update after my blood work.

Mar 13, 2019 · Looking for others with Pituitary Adenoma in Brain Tumor

Hello It will be three years this May that I was diagnosed with my Pituitary tumor. It was discovered after my gynecologist ordered bloodwork and found that my Prolactin levels were very elevated. She immediately sent me to an Endocrinologist who ordered an MRI and an Ultrasound of my Thyroid because she felt nodules. The MRI came back positive for the Pituitary tumor, and I was referred to a Neurosurgeon. It took me time to find one as the one she referred me to didn’t take my insurance. Once I found one he explained to me in more detail what was going on. He told me there are only three instances where he operates, one if it continues to grow, two if it starts to affect my vision and the third is if I started having other symptoms. He also informed me that he saw something else on my MRI and asked if I had previously had any other scans of my brain. I told him two years prior I’d had a CAT Scan to make sure all of a tumor had been removed from the base of my skull. It was to make sure all the cancer had been removed. I was able to pull the films up on my IPad. He said the same spot was on the CAT Scan. At my six month MRI appointment he informed me I also have a Meningioma.Fast forward to my November appointment with the Endocrinologist my labs were all abnormal and I started having symptoms. The Endocrinologist ordered more bloodwork. One of the test was the glucose suppression test to check my growth hormones. Had to get the test done twice because the lab did it wrong the first time. The Endocrinologist warned me it might happen. In the meantime I had my appointment with the Neurosurgeon he said that the Pituitary and the Meningioma tumors are both stable. When I mentioned my recent lab work and symptoms he said if the lab work came back abnormal it would be time to discuss removal of the tumor. All my labs came back fine except my Prolactin levels are going back up. The Endocrinologist changed my medication dosage for the fifth time and said if it doesn’t go down she will repeat the glucose testing. If there’s a change in the Glucose Test then she will recommend to my Neurosurgeon to move forward with removal of the tumor. I go in two weeks get my Prolactin levels checked.

Feb 9, 2019 · Pituitary Tumor, Then Meningioma: Requesting Advice in Brain Tumor

Three years ago I was diagnosed with a Pituitary tumor. It was discovered after my gynecologist ordered blood work. During my first visit with my Neurosurgeon he said he saw something else on my MRI but would wait until my six month MRI before we would worry about it. He asked if I had ever had any other Scans of my brain and I told him that I’d had a CAT Scan when they were checking to see if there were any signs of Cancer left from a tumor that had been removed from the base of my skull. I was able to show him the films on my IPad. He informed me that the spot was on the CAT Scan as well. Fast forward six months later. I go for my check up with the Endocrinologist and she asks why I didn’t get my MRI done. I told her I did, but I forgot to ask them to send her the results along with my Neurosurgeon. So she called and asked them to send her the report. As she’s reading the report in front of me her facial expression changes. Then she says to me has the Neurosurgeon received this yet. I said yes but my appointment isn’t until the end of the month. She proceeds to tell me I have another tumor and it needs to come out. I was beside myself with worry because she didn’t say where it was just that it was attached to my brain. I had decided to wait until my appointment since it was so close to Christmas. But later that day the Neurosurgeon office called saying they needed to change my appointment till the end of January. I asked her if there was any way to see him sooner because I just been told I had another tumor and I couldn’t wait a month to see him I’d be a wreck by then. She went in to check and just as she went in someone canceled for the next day. I get there and started getting nervous because I was in the exam room for almost an hour before he even came in. I saw his assistant and he said that the doctor was reading the MRI’s and would be right with me. All sorts of things started going through my mind. He comes in the room and tells me that he’s sorry it took so long but he wasn’t able to load both disks at the same time in order to do a side by side comparison. That what he suspected at my last appointment was confirmed. He went on to explain to me exactly what a Meningioma was, that mine was small enough that all we needed to do was watch it for now. He also said that my medication was working because the Pituitary tumor had shrunk some since my last Scan. Fast forward three years, there has been no change in the tumor it’s not growing but it’s not shrinking either. So from a size standpoint both tumors are stable. From a lab standpoint there were some issues my growth hormones have been all over the place and they were concerned that the medication was no longer working. So I had other testing done. My growth hormones are where they should be. My question is I’m having most of the symptoms that they told me to watch for. I also have a tumor on my Adrenal gland. I talked to another doctor and he said with all my other medical conditions if I was his patient he would be calling the Neurosurgeon and telling him the pituitary tumor needs to come out. Especially since I have the adrenal tumor. He believes that if the pituitary tumor is removed that some of my other issues will resolve themselves. I have also started to have issues with my heart. What I’m wondering is do I seek a second opinion. I also have cysts in my liver and kidney which right now are very small.