About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (6)

5 days ago · JAK2 Mutation - Effects and Questions in Blood Cancers & Disorders

I am tired some in the morning but otherwise once I get going I’m ok. I wonder if it is your BP meds making you tired? How’s your diet? Do you take any supplements?

Fri, Apr 5 9:08am · JAK2 Mutation - Effects and Questions in Blood Cancers & Disorders

No I haven't heard and my doctor hasn't mentioned but thank you I'm definitely going to look at this. Can you share anything you have?

Thu, Apr 4 8:00am · ET - Essential Thrombocythemia & Fainting in Blood Cancers & Disorders

I have not had issues with fainting. Lightheaded at times but typically that is when my blood pressure is low.

Sun, Mar 24 12:40pm · Chemo and liver enzymes in Blood Cancers & Disorders

No she hasn't said. I would be interested to hear if anyone else on hydrea has ever had elevated liver enzymes and what they did. Thank you!

Mon, Mar 18 10:08pm · Chemo and liver enzymes in Blood Cancers & Disorders

I have recently been diagnosed with ET after having a stroke one year ago and only 49 years old. I have been on Hydrea for 2 months to lower my platlets down to the 400s. After one month no change so they increased it to 2 a day and that got them down to 430 but now my liver enzymes are high. Has anyone else experienced this? I am having them rechecked in a week but was told I may need to take a break from the Hydrea.

Sat, Jan 26 9:09am · JAK2 Mutation - Effects and Questions in Blood Cancers & Disorders

I am + JAK2 and just had a biopsy and they still don't know for certain that I have ET but my blood work is normal except my platlets are high in the 580s. I had a stroke last year and I'm only 49 the main symptom was numbness and tingling in my hands and after the stroke burning sensation in my feet. Nobody was listening to me until I pushed for further testing and was positive. They have started me on hydrea and no bad side effects. Just hope it brings my platlets down so I don't have another stroke.