Member has chosen to not make this information public.

Groups (1)


Member not yet following any Pages.

Posts (2)

Jan 26, 2019 · Anyone else diagnosed with acoustic neuroma, a benign brain tumor? in Brain Tumor

Acoustic neuroma..also known as vestibular schwannoma….my tumor was a schwannoma tumor but was located on my optic nerve…it is also very rare. It was removed in 2008 but with some damage. No peripheral vision, can't use my left eye. No radiation required. Brain tumors are very scary and it is very important to have a good support group (family and friends). I wish u the best of luck

Jan 25, 2019 · Life after Brain surgery in Brain Tumor

I had a schwannoma tumor growing from my optic nerve. It took 2 craniotomies to remove…but that's only because the first neurologist diagnosed the tumor wrong..he thought it was a meningioma tumor. The result of the first craniotomy was not removing the tumor and loss of peripheral vision and double vision for about 1 month afterwards. I was then sent to another neurologist who diagnosed it as a schwannoma tumor. The second craniotomy resulted in removal of the tumor, however, there was some damage done. I can no longer use my left eye. Also, the brain tumor was pushing against the pituitary gland and damaged it causing me to get diabetes insipidus ( water diabetes) They also found an orbital mass…they are continuing to watch it with yearly mri's. It's been a struggle…I really miss driving. But I am very thankful I am not completely blind.