I don’t know if there is a number to call or not to be honest
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I was diagnosed 8 years ago with it and that is because of pain in my spleen from being enlarged. I have gone and had blood tests monthly then pint of blood taken monthly and just got on medicine. I have had scans of my bone marrow from a biopsy in the past as well.
I just got back from my blood doctor appt and i advised her that I cannot keep going every month to have a pint of blood taken to reduce my levels… We discussed medication but she is concerned because i am only 36. I have MS along with JAK2 and so being on one of the medications will increase leukemia and the other she is not sure what it will do to me.
What is everyone on for medication and how does it effect you? I know everyone is different but Thank you in advance!