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Posts (11)

Sat, Apr 20 7:47am · JAK2 Mutation - Effects and Questions in Blood Cancers & Disorders

I don’t know if there is a number to call or not to be honest

Fri, Apr 12 6:16pm · JAK2 Mutation - Effects and Questions in Blood Cancers & Disorders

I was diagnosed 8 years ago with it and that is because of pain in my spleen from being enlarged. I have gone and had blood tests monthly then pint of blood taken monthly and just got on medicine. I have had scans of my bone marrow from a biopsy in the past as well.

Fri, Mar 29 11:27am · Medication for JAK2 in Blood Cancers & Disorders

Thank you!

Fri, Mar 29 9:50am · Medication for JAK2 in Blood Cancers & Disorders

Jakafi and the other medicine i don’t remember the name

Thu, Mar 28 8:37am · Medication for JAK2 in Blood Cancers & Disorders

I just got back from my blood doctor appt and i advised her that I cannot keep going every month to have a pint of blood taken to reduce my levels… We discussed medication but she is concerned because i am only 36. I have MS along with JAK2 and so being on one of the medications will increase leukemia and the other she is not sure what it will do to me.
What is everyone on for medication and how does it effect you? I know everyone is different but Thank you in advance!

Wed, Jan 23 1:54pm · JAK2 Mutation - Effects and Questions in Blood Cancers & Disorders

Would you mind keeping me posted on what you noticed? I have ms as well and they saying not related to that so wondering if to the blood

Wed, Jan 23 11:22am · JAK2 Mutation - Effects and Questions in Blood Cancers & Disorders

That is what I have and what my treatments are as well I just do not know much about it at all