I swear it was Vitamin D 5,000 IU daily that caused my Grover's disease 5 years ago.
Member has chosen to not make this information public.
Member not yet following any Pages.
I HATE cilantro! I have hated it for many years! It tastes like bar soap in your mouth. One or two tiny sprigs on a whole meal is tolerable but any more than that is unbearable (in salsa too). Some people attribute more of it to better tasting – absolutely false. How much do you eat daily?
Doc has now changed up program once more. I now use the Triamcinolone 0.025% (low dose) twice a day for five days and Elidel 1% twice a day on weekends. Doc took another biopsy and stitched the hole (I had him remove the worst one). I will post results of that when in. Doc has now started me on Isotretinion pills 40mg once a day. I would like to mention that I am seeing very significant improvement from day one of starting the pills only 7 days ago. I'm over 50% cleared up which may be the best I had ever been (previously) with the Impoyz cream (only allowed to use for two weeks max – then only to return). Can't wait to see next week. I'd also like to mention I started the Vanicream bar soap at the same time a week ago from these posts.
I don't understand why they call it transient acantholytic dermatosis when for me there's nothing transient about it. Mine is in the chronic stage and has been for 5 or more years and is in no transient form whatsoever. However, the intensity of it comes and goes.
Doctor has now changed course of action once more. After the Calcipotriene Foam exacerbated the problem times 3 (for the second time – like once wasn't enough?), now I'm on Triamcinolone Acetonide again however a weaker dose of 0.025% instead of the usual 0.1% for two weeks. Then alternating ELIDEL (pimecrolimus) Cream 1% 5 days per week and the Triamcinolone 2 days per week from then on. We will then start a course of Isotretinoin after the required two week waiting period. So far the Triamcinolone has relieved the havoc of the Calcipotriene. Wondeing if I may be one out of every 300 people that has a Vitamin D allergy? (Used Walgreen's only coupon for non-generic Elidel $40 instead of Generic one at CVS for $160 – after Dr. re-approval for non-generic at my request. Generic at Walgreen's was $106. Amazing how they try to sell you the generic for much more!)
I have had GD for over 5 years now on my chest. First dermatologist prescribed Salex cream (6% salicylic acid) and also used OTC hydrocortisone 1% cream & gel. keeps itch under some control but virtually no help. Went on with this therapy for 4 years until I finally decided I need some more professional help. The new Doctor tried many things, Hydrocortisone 2.5%, then Triamcinolone Acetonide 0.1% lotion with tetracycline pills, no help. Fluocinonide cream 0.05% and cortisone shot, only slight help but not much. Calcipotriene cream 0.005%, this made it way worse. Then tried Impoyz clobetasol propionate 0.025%, this seemed to help the most after a week but never fully went away, and you can only use this cream for two weeks maximum at a time. During two weeks off it comes right back again. Then I tried Eucrisa 2% for about a month, started getting worse (even used with occaisional Impoyz too every third day). He also started the light box at his office – needs to be approved by insurance. Now he put me back on Sorilux calcipotriene foam 0.005%, he said the foam delivery might make a difference. So far it's getting much worse after a week but I've read somewhere that it may do this before starting to get better. We are going to start a course of Isotretinoin pills in a couple weeks. Those pills successfully eliminated my acne in my late 20's. I am now 57, male.