Thank you. I am calling this week to make the appointment.
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Anyone else ever in no man’s land that finally received answers from Mayo? I have had 2 neurologist say that I am showing all signs of general mg, although testing is not adding up. I have been hospitalized for an mg crisis and had IVIG therapy., on Mestinon, extended release at night and 30 mg of prednisone for months, use a walker and have to minimize activity greatly or I decline. I have been to several doctors and am now being referred to Mayo. I am so tired of not ‘living’. I really want a treatment that will allow me to live a normal day and hopefully return to work. One physician believes it was triggered by breast cancer and my immune system not turning off and now fighting good cells. Stage 4 survivor in remission.