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Autoimmune diseases, Blood disorders, Chronic pain, Digestive disorders, Immune disorders, Lung and airway disorders

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Posts (8)

Fri, Feb 1 11:18pm · GERD ? in Digestive Health

@jadillow I kinda have the same symptoms. I am scheduled for an echo today. All I know thus far is I've been burping a lot and having tightness in my chest accompanied by lightheadedness. I'm also on omneprazole

Sun, Jan 20 6:48pm · Pain in chest for months in Lung Health

Hello. Where can I start. Well I've been dealing with Chest pain for months now and it's getting worse. Feels like there's pressure and its really tight. I have fluttering feelings. I did an Echo and an ECG which were fine. I later on developed a swollen inguinal lymph node which was biopsied and came out as sinus histiocytiosis.. Could this be linked to my chest pain, I'm struggling for breath . An recent showed peri hilar lymaphadenopathy Can anybody help, I'm losing my mind

Sun, Jan 20 12:46pm · Rosai-Dorfman Disease (Sinus histiocytosis) in Blood Cancers & Disorders

Thank you so much for your help and for the articles. Yes, I will be seeing a hematologist. I will keep you posted

Sun, Jan 20 10:35am · Rosai-Dorfman Disease (Sinus histiocytosis) in Blood Cancers & Disorders

@colleenyoung thank you. It has taken over six months for me to get that diagnosis. I'm yet to see any Dr, my appointment was set for next month. As much as it's been a relief, the pain has been somewhat unbearable because i have also been having chest pain. I was just curious to know if its related. Thanks for the link, let me read more about it

Sun, Jan 20 9:47am · Rosai-Dorfman Disease (Sinus histiocytosis) in Blood Cancers & Disorders

Hello, I just had an inguinal lymph node biopsy and the results came out as Sinus Histiocytosis/Rossi Dorfman Disease. I was wondering if anybody here has ever had this diagnosis. What treatment plan worked for you.. Please help

Sun, Jan 20 8:15am · Rosai-Dorfman Disease (Sinus histiocytosis) in Blood Cancers & Disorders

Hello I was wondering if anybody here has ever heard of this autoimmune disease. If so, what treatment worked for you. Thank you

Sat, Jan 19 6:58am · Help with Histiocytes in Blood Cancers & Disorders

@dazlin I have the similar diagnosis and symptoms. I was just wondering how you managed to recover from it