Lots of prayers coming your way.
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I use to cough so much, my vocal cords were filled with sores. They wanted to scrape them. After reading about it, I wouldn't let them. I told them I'd teach myself not to cough. I carried water everywhere. I used castor oil packs on my chest. This cleared up the pain and congestion in my chest. I still cough some put not near as much. The shortness of breath is bad on some days. I try to slow down and will stop until I catch my breath. I deal with it because I don't like taking medication. I do take turmeric and it does help. When I stay on a anti inflammatory diet this helps the most. I have oxygen when I do cardio. I was on prednisone for the first 7 years. I hated it. I take a nasal spray for allergies. I am incharge of my health and I must do everything I can to promote it. I fail a lot, but keep on trying. Good luck.
Don't give up. You'll have ups and downs. Take advantage of your ups, read all you can and try to promote healthy things little by little. I tend to want to give up when it flairs up. But you can't. Start slow and try to move ahead a little everyday. Take care.
I have had sarcoidosis for over 20 years. The first 5 or so was very. I went to work and bed. And sometimes slept at my desk. I've been exercising for 5 years, try to eat healthy. I have good days and bad. I do go to Mayo and very happy I do. They take time for you and are very knowledgeable. My test are shown to me and explained. Thank goodness mine has never left my lungs. It is something that you have to learn to deal with. Good luck.
Hi, I was diagnosed about 20 years ago. Fortunately, mine has stayed in the lungs. I really struggled a lot dealing with different issues. The pain in my chest never seemed to let up. I came accross an article on castor oil packs. It charged my life. It took away all the pain and I was able to take deep breaths for the first time in a long time. I did it for three nights in a roll. I feel like it got rid of all the old stuff hanging on to scare tissue. I had lots of foot pain also and it helped with that. Good luck.