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Posts (221)

4 days ago · Living with Neuropathy - Welcome to the group in Neuropathy

Hi @jesfactsmon and @madsoann8 I agree rubbing is helpful. It promotes circulation. My 90 year old mother gets up to rub her legs and arms when she can’t sleep from a neuropathy flare up. She swears it decreases her pain so she can sleep.

5 days ago · anyone feel more burning/numbness when sitting in Neuropathy

Hi @jimhd @maryv449. I noticed my pain is more when I sit also. Perhaps it is because we are not mobile. When we walk the exercise promotes better circulation..,,,just a thought.

5 days ago · Myotonia Congenita in Neuropathy

@liolioness I have never tried Vitacost. Good to know to look them up. Thank you! 😃

6 days ago · Trigeminal numbness in Neuropathy

Hi @kraison1979, awful to deal with in your mouth. My heart goes out to you. You have to remember your brain does not get the proper signals to deal with the temperature changes in your mouth so be extra careful with burns. Without thinking, I used my left hand predominately and suffered both cold and hot burns. Since then I have been more cautious and have not gotten burns again. @kraison1979 perhaps going to an ENT(ear, nose, throat) doctor may further help. Some specialize in throat. See what is available in your area.

6 days ago · Myotonia Congenita in Neuropathy

Hi @lioness, Are you talking about the ALA and Acetyl L Carnitine. Thanks for the confirmation! I did research and found the same results they compliment each other.

6 days ago · Myotonia Congenita in Neuropathy

Hank, taking many medications and/or supplements at once, certainly makes it much harder to determine what helps with an ailment or gives an allergic reaction. I can understand. I have never had an allergic reaction until last year when I started 2 new supplements at the same time. Since I only take supplements, after my allergic reaction of an itchy rash all over my body, I stopped everything for 2 days then slowly reintroduced supplements until I got the reaction again. It was one of my new supplements which I took before but from a different manufacturer. I never checked to pinpoint the exact culprit.
I will try the combination of ALA and Acetyl L Carnitine first then adjust accordingly from there. You have given me more info to research, thank you!

6 days ago · Myotonia Congenita in Neuropathy

@jesfactsmon Hi Hank, thank you for the advice. I am grateful for being able to take the ALA for now. Perhaps later on an empty stomach. Before my AVM I had graduated to taking the highest dose available for cayenne pepper capsules. No upset stomach when taken as directed with food. My husband tried but couldn’t tolerate it. So I became determined in finding a way to take the ALA. With the ALC I plan on a total daily dosage of 1000mg. Thanks for the dosage information you and your wife take for the ALA and ALC. It is very helpful. I will figure what will be easier on my stomach. Did you and Linda see a significant difference with the neuropathy pain?

Sun, Jul 26 8:53pm · Trigeminal numbness in Neuropathy

Hi @kraison1979, I agree the gabapentin helps with pain. I have neuropathy on the left side of my body from my forehead to my toes. Unlike you, I don’t have the uncomfortable feeling in my mouth. Since the gabapentin is not working, I would contact the physician prescribing the medication to try another method or medication. Talk about how you would prefer to handle the pain.