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Posts (180)

19 hours ago · Eyes and Neuropathy in Eye Conditions

Hi Hank, I understand sometimes we have to make sacrifices for our health. I always look for alternate ways. If I have a choice I prefer not using any animal sources, especially seals. I cannot justify taking a supplement purely on chance I.e. without any medical evidence. I do believe there is a difference between the two. It is the seals that are the mammals. Their quantity is greatly outnumbered by salmon or fish which is farmed. Besides the fish oil, I eat walnuts and flax seeds. A vegetarian diet can be a very healthy diet. Fantastic! I believe it can help in many health issues.

21 hours ago · Eyes and Neuropathy in Eye Conditions

Hi Hank @jesfactsmon, I too have been taking a fish oil omega3 supplement. I believe all the fish oil supplements contain DPA, docosepantaenoic acid. The amount is much lower than EPA and DHA. There are other seafood sources but specifically salmon has the higher amount. How much DPA is needed? And how much more DPA is there available from salmon? Sorry, but I will not try a supplement derived from seals.

22 hours ago · Living with Neuropathy - Welcome to the group in Neuropathy

Hi @fiesty76 keep up the good work with your diet. My mother grew up on the Mediterranean diet. It was choosing low carb foods that made the difference for her. She drinks mainly water. Occasionally she likes to drink herbal teas that she grows herself as a hobby. She drank no caffeine so no coffee or black tea. I believe water is best too. I do not have caffeine either. There is a coffee substitute made from roasted chicory and barley which we both enjoy. My grandmother drank it also. No caffeinated drinks for her either. I believe iced black tea may affect the kidneys. I do not know how much you drink but you may want to research the matter. Having a healthy diet along with exercises can make all the difference. Luckily you have the interest in foods to make your search easier. Wish you well.

1 day ago · Eyes and Neuropathy in Eye Conditions

Hi Rachel @rwinney. I have noticed my new glasses have made a significant difference in decreasing my photophobia. With the prescription eyes glasses, each eye sees the same magnification thereby decreasing the strain. I still have the double vision. With a lower sensitivity to light, I am able to open both eyes more. I use the lubricating eye drops. I am wondering what you can do to decrease your eye strain. Ask your ophthalmologist if your photophobia is related to eye strain. I still have some eye strain due to the diplopia but apparently I reduced just enough to cause the photophobia to decrease. I hope you get some relief. My mother has macular degeneration and complains of photophobia. Unfortunately all she can do is wear sunglasses outdoors for help.

2 days ago · Living with Neuropathy - Welcome to the group in Neuropathy

Hi @fiesty76. We are all here at the Mayo Clinic discussion to help give you information from our experiences. I am a firm believer in questioning physicians. They can make better decisions for treatments with more accurate information.
Dialysis for medications takes place in either the kidneys or liver. The physician got you off certain medications to avoid dialysis in the kidneys in attempt to lessen the work load of the kidneys. Can you drink more water to flush out the kidneys? I don’t know if you have a water restriction with your diet? My 90 year old mother was diagnosed with renal disease stage 3. After many months of drinking 8 glasses of water daily, her diagnosis was no longer. She also had prediabetes but unfortunately later developed diabetes and was given an oral medication. She followed my instructions to control her diabetes through diet and exercise. With the results of her hemoglobin A1C, her physician discontinued the oral medication for diabetes. She continues to lose weight which also lowers her hypertension diagnosis. Through diet and exercises she is able to manage her cholesterol without any medication. Following a diet and exercise regiment is difficult but the benefits can be numerous. I like trying to solve medical issues with foods first, If possible, rather than medications because I don’t like dealing with the adverse affects.

2 days ago · Arteriovenous Malformation (AVM) Survivors and side effects in Stroke & Cerebrovascular Diseases

Hi @bobbiejo13 I am sorry your daughter is going through the migraines. Did she have a ruptured AVM? I don’t understand the radiation treatment for an AVM. Was something else discovered? The outcome of deficits depends on the location of the AVM, in other words, what part of the brain the AVM affected. With my ruptured AVM I did get the awful migraines for which I received a prescription for a pain medication but I opted for Tylenol. The headaches came 3 times per week initially but a bag of ice on my head offered better relief. I found myself using ice on my head in order to sleep. I was told the headaches were part of the healing process. I could feel when my brain was making new connections. It occurred more often in the beginning. I too have visual disturbances. I do not get the migraines as often as I used to, maybe once every 10 days, but I wonder if the migraines are due to my diplopia. What kind of visual disturbances is your daughter experiencing? I did not get much information from my neuro ophthalmologist for treatment. Not much information was provided by my medical team of doctors because not much is known since there are not many survivors. Basically, I was left on my own to learn as I go through my experiences. Everyone is different but I will gladly help in any way I can. I strongly urge you to question each physician with what the plan of treatment is and why. After all, they are not the ones experiencing the awful deficits. How can they understand when there is not much information out there?

2 days ago · Living with Neuropathy - Welcome to the group in Neuropathy

@fiesty76 you’re welcomed. Since you were prescribed the supplements ask the reason why. I don’t know if you are taking prednisone, a corticosteroid, but that will cause easy bruising. Talk to your physician or your pharmacist as to the expectations of supplements and medications. Many can have side effects along with benefits. I always research before making the decision of what is right for me.

2 days ago · Living with Neuropathy - Welcome to the group in Neuropathy

hi @fiesty76, yes Turmeric helps in many aspects. It is a blood thinner therefore allowing the blood to better circulate to help with pain. Fish oil is another blood thinner. I take it as well because salmon contains ALA and ALA helps some people with their neuropathy. Since you take aspirin be aware that vitamin E is also a blood thinner. PLAVIX is classified as an anti platelet medication which works differently from a blood thinner. Ask your doctor for any concerns you may have. All doctors ask if any supplements are taken for a reason. Some supplements can cause a synergetic reaction with a medication.