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Posts (3)

Jan 28, 2019 · Parsonage turner syndrome * in Brain & Nervous System

My symptoms regarding this PTS is: Severe numbness in the face, which in turn is causing other issues (blurred vision, runny nose, feeling of imbalance etc) I have seen 7 doctors, none of whom can tell me why the numbness is in my face. I apparently have nerve damage in my neck (c4,5,6). I also have weakness in both shoulders. The only good thing is that I have no pain with this, that in itself makes me wonder what's really going on with me. Unfortunately, doctors are no help, nor are they really concerned.

Jan 18, 2019 · Parsonage turner syndrome * in Brain & Nervous System

I have not found anything that has helped alleviate my numbness. My numbness is mainly in the face which causes other issues, such as: Runny nose,feeling hot and borderline sweaty, blurry vision etc. This gets really bad sometimes. When I raise my arms at shoulder level or above, that is when it gets bad. Face becomes more numb, hot, sweaty and a feeling of loss of balance. Why is this?

Doctors tell me that I have nerve damage in the C4/5/6 in the neck. Okay, I had cervical stenosis surgery in July, that did absolutely nothing. The numbness in my face never goes away, it's there 24/7, my feet get numb as well. I have had several MRI's, scans, whatever, doctor tells me that there is nothing they can do for nerve damage. I think it's more a lack of concern and effort on their part. Meanwhile, I just continue to suffer.

Jan 17, 2019 · Parsonage turner syndrome * in Brain & Nervous System

I have also been diagnosed with PST. The question I have with this diagnosis is I am not experiencing any pain. The main problem I have is numbness in the face, head, feet, especially the face, why is this? The facial numbness cause other issues such as a feeling of imbalance, runny nose, get hot and a little sweaty. It really gets bad. Doctors tell me they can't do anything about nerve damage. Really Docs? It's really unbearable at times