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Posts (9)

Jul 28, 2019 · Loss of adult child to brain cancer in Loss & Grief

Hi Ginger. Derek made music through electronics and techno. He has a few songs on SoundCloud and iTunes, his travels to many countries inspired him. You can find him under D-Rex💔🙏🏻

Jul 27, 2019 · Loss of adult child to brain cancer in Loss & Grief

Thank you Ginger. Those are good ideas. I am looking to do a music scholarship in Derek’s memory when I am stronger and can concentrate better. 💔💔🎶🎶

Jul 27, 2019 · Loss of adult child to brain cancer in Loss & Grief

Hi Danielle. It is the most painful thing imaginable. I am so sorry for your loss of your precious daughter. I watched my son as we cut the umbilical cord and I watched as he took his last breath in hospice at age 28 on April 17th, 2019. Derek was in 82nd Airborne, served our country in the Army for 9 years, got out and was enrolled to start his music career on January 7th. But everything went crashing down on December 12, 2018. Suddenly a massive tumor in his brain. After 3 brain surgeries, a feeding tube and 6 weeks of grueling radiation, the cancer throughout his brain and spine were gone. Only to all come back in weeks and took him. He never left the hospital or walked again, he went into hospice on April 10th. I have found some comfort with grief counselors and much support from Compassionate Friends group, all parents who lost their precious child. They are a national organization with chapters in many states. I am learning that I have to somehow carry this grief all of my days of my life, it is hell and I am so sorry for all of us and our precious loved ones who had to endure this monster called cancer. 💔💔🙏🏻🙏🏻

May 7, 2019 · Loss of adult child to brain cancer in Loss & Grief

Thank you Scott and so sorry for your loss. Is there a group of families/spouses etc that lost their precious loved one that meet either by phone or annually? If not, maybe we should form one and meet invdifferent states each year? A place where everyone has felt the heartache and difficult journey we experienced and are left to carry on.

May 7, 2019 · Loss of adult child to brain cancer in Loss & Grief

I have posted a few months back, when my son, 27, was suddenly diagnosed with a primary brain tumor in left temporal lobe on December 12, 2018. After 3 brain surgeries and 6 weeks of brain and spine radiation, He spent 4 months, fighting like the warrior he is, battling what was a rare Glioblastoma and Embryonal Tumor (CNS) hybrid Tumor .. The tumor in his brain ended up a mix of Embryonal, which meant tumors spread throughout brain and in spinal cord via cerebral spinal fluid. April 10th, after all treatments to fight this monster cancer were exhausted, the tumors came back and my precious son passed in hospice on April 17. It has been unbearable, as those on this site know all too well. I know we all grieve for our losses, parents aren’t supposed to write the obituary and plan a service for their child, nor their siblings. Is there anyone that has experienced this type of brain tumor that leaves the brain, travels throughout the CNS and paralyzes a soldier of 9 years to not leave a hospital bed until Hospice. I am desperately looking for other people who experienced this type of cancer as it is rare and leaves me and my family completely at a loss as to cause. We are told it is due to cells splitting abnormally and more molecular and very rare and “extremely bad luck “. Our docs and medical team have been wonderful but so much unknown about this hybrid of tumor.
Holly Derek’s mom

Feb 22, 2019 · Embryonal Brain tumor in Brain Tumor

Derek has made it through 6 weeks of brain and spine radiation and he has come so far and his personality is coming back and is eating so well! This was on top of a shunt and a revision of the shunt surgery in addition to a temporary feeding tube which helped him tremendously. Received amazing news last night. 🙏🏻🙏🏻Wakemed hospital has a bed available on Wednesday on their neuro inpatient rehab and Derek’s insurance has approved it. Duke Docs will give Derek the Avastin infusion today which they feel will continue to help him feel better and kill off any remaining tumors. That will need to be done here at Duke every 2-4 weeks and not sure for how long and how we monitor for any new tumor growth yet. His tumor was is a Glioblastoma and Embryonal mix, has anyone heard of other people having this type of brain tumor? OT PT has been able to get him from bed to recliner for a few hours the last couple days🙏🏻 Derek said he is ready to go and let’s do this 🙏🏻🙏🏻 He has been in hospital ever since his first brain surgery, 72 days ago. Through Derek’s amazing strength and perseverance, along with the medical expertise and loving care, and the rallying of so many kind thoughts and powerful praying from around the world, Derek is one step closer to coming home 🏡 So much uncertainty yet are blessed we have him and hope 🙏🏻

Jan 18, 2019 · Embryonal Brain tumor in Brain Tumor

Thank you for sharing your story. He has been in hospital 37 days and 3 surgeries. I am not sure if he will be able to withstand the 4-6 weeks of radiation treatment but it is our only hope. This tumor is so aggressive it spread throughout his brain and into his spinal cord. So sorry to hear about your daughter. How is she doing now? I do not know if my son will make it, he is fighting like the soldier he is. He will need extensive rehab as the first surgery left his whole right side immobile and significant speech difficulty.

Jan 18, 2019 · Embryonal Brain tumor in Brain Tumor

Thank you Colleen for reaching out and connecting me to others. My son has been in the hospital since diagnosed on December 12th, 2018. He had just finished 9 years of service in Army in June and was looking forward to his next chapter. He loves music and enrolled in college with GI bill on 1/7. So he was living with us during the transition and then his life was suddenly turned upside down. We live in NC and he is at Duke Brain Tumor Center.