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Tue, Aug 20 12:18pm · N-A-C and apo-Lactoferrin helping MAC and Bronchiectasis in MAC & Bronchiectasis

I've been taking the time-release one (N-A-C Sustain 600 mg by Jarrow twice a day). I have no idea if it makes any difference to do the time-release on or not. I was just reading more about apo-lactoferrin and its uses for preventing and treating bacterial and viral infections. It might be useful to look into that for preventing colds and infections by taking one lactoferrin capsule a day. I've been taking the LIfe Extension formula of apo-lactoferrin but I hear the Jarrow is good also,

Sun, Aug 18 2:36pm · N-A-C and apo-Lactoferrin helping MAC and Bronchiectasis in MAC & Bronchiectasis

I've been having great success with taking a couple of supplements for the last 7 months. I wonder if anyone else has tried these particular two supplements regularly over a number of months and found success in that. I have been taking the Apo-Lactoferrin bought through Life Extension once a day and the N-A-C 600mg Sustain by Jarrow for about 7 months now.
I keep getting better and better. My lungs seem stronger though I haven't had them tested and my heavy almost constant chronic cough that I had for a couple of years is pretty much gone. I have a brief few coughs right after extensive exercise that brings up and clears a bit of thick mucus most days that I exercise but it's only for a moment about 10 minutes after an hours worth of exercise. My pulmonary doc appt isn't till October, so I don't have any diagnostic proof without tests to see if I'm rid of the heavy concentration of MAC and Aspergillus that I was diagnosed with after a Bronchcospy in January.
I have not yet taken any antibiotics or medicine for treating the MAC as I wanted to see what I could do on my own. I also use some light saline nasal spray in the mornings. I could be just lucky, but it seems those supplements are doing what some research said they might do and are helping break up the biofilms of the mycobacteria and helping my immune system keep them at bay (or maybe even rid me of them!).
I also take Jarrow Curcumin once a day for good measure to help prevent any possible inflammation for the last 4 months and have been taking 500mg of D3 sublingually but I've taken the D3 for a couple of years, so I think it's been the N-A-C and the app-lactoferrin that's working for me!
Anyone else tried N-A-C in a consistent dosing over a number of months? I think the long-term consistent dosing with the N-A-C supplement is important not just to get at and break up the hard to reach MAC that hides in its biofilms, but to prevent any new NTM from getting a deep hold in the lungs. Again, I don't know whether it's the N-A-C alone or with apo-lactoferrin, there's just much more research on N-A-C since it's been used for other useful things in medicine, like preventing liver toxicity.
Here's an initial study on it from last April in relation to lowering problems with bronchiectasis: https://respiratory-research.biomedcentral.com/articles/10.1186/s12931-019-1042-x.
Here's another research paper on N-A-C and it's effects on breaking up resistant bacterial biofilms: https://www.ncbi.nlm.nih.gov/pubmed/?term=N-acetylcysteine+as+powerful+molecule+to+destroy+bacterial+biofilms.+A+systematic+review

Mon, May 20 8:45pm · Negative sputum results without treatment in MAC & Bronchiectasis

I've been taking 600mg of NAC (Jarrow N-A-C Sustain) twice a day for about 5 months now or my MAC without starting antibiotic treat yet.. It took a couple of months, but I went from debilitating coughing all day to hardly coughing even lightly now. I don't know how that affects my MAC count, but I feel so much better. Here's a recent study, published in April 2019 about how NAC has been shown to help for bronchiectasis and may disrupt the biofilms in MAC: https://respiratory-research.biomedcentral.com/articles/10.1186/s12931-019-1042-x. I also take one tablet of apo-Lactoferrin (by Life Extension) each evening to kill the MAC. I try and take the NAC on an empty stomach with a little bit of pink grapefruit juice. I don't know if the grapefruit juice increase the effect or not.

Thu, Mar 7 9:49am · Survey about Non-Tubercular Mycobacterium - please participate in MAC & Bronchiectasis

On April 8th, 2019, the U.S. Food & Drug Administration will host a public workshop on the development of antibacterial drugs for the treatment of nontuberculous mycobacterial (NTM) infection. At this workshop, we will convey patient experiences and preferences for treatments and clinical trials.

Ahead of this workshop, we are asking you to please take 20-30 minutes of your time to complete a survey on this subject. The time you take today will help shape the development of tools that can be used in future clinical trials to advance the development of new therapies for NTM.

Please complete the survey no later than March 25th, 2019. After the data have been analyzed and presented at the FDA, we will publish a summary report on ntminfo.org.

As further details become available about the workshop, we will keep you informed.

Copy and paste this link into your browser: https://www.surveymonkey.com/r/NTMprosurvey

Sun, Jan 20 5:22pm · New Diagnosis of MAC/MAI & I'm scared in MAC & Bronchiectasis

What are the laternative treatments you use? I was just diagnosed with MAC and don't want to do antibiotic treatment.