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Thu, Mar 21 8:15pm · New Diagnosis of MAC/MAI & I'm scared in MAC & Bronchiectasis

Exercise does help me to feel better, but I get out of breath a lot. Not on any meds, just vitamins and bone broth. Looking for another doctor and hoping I get a good one. So far all they do is CT scans every 6 months and blood work. I just keep working and moving every day. Does anyone question the intercellulare part of the disease? My bones hurt more and digestive system gets bad at times. I believe that other cells in body are being attached. So tired most days. So appreciate everyone's posts on here.

Mon, Feb 18 6:52pm · Colloidal Silver in MAC & Bronchiectasis

Thank you for sharing.

Tue, Feb 12 7:57pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I looked it up and you can get this disease from birds feces over a number of years of inhaling the dried particles in the air if your immune system is compromised. I am allergic to cats and I have a cat, but take allergy pills. You can also get his disease from dirt and water.

Tue, Feb 12 7:50pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Fruits, veggies, bone broth. I take bone broth capsules. Also turmeric capsules is good to take.

Tue, Feb 12 7:48pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Alll I know is the doctor said to never bring birds in your home. Not good for humans. People that work in chicken places get this disease as well. I wished I had known too. My husband did not clean the cage like he should have and it was awful.

Wed, Feb 6 7:12pm · Any good results from taking Amikacin?? and what were side effects? in MAC & Bronchiectasis

Thank you something to think about in our journeys

Tue, Feb 5 7:33pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I was living with a parrot for 13 years and when my immune system went down, i got this disease. The dr. told my husband to get that bird out of our home and bring hazmat in. He said no human should bring a bird into their home. I am finding that being around sick people is not good for me. When i get a cold, it turns into much more and i get so sick. Because i dont look sick, people do not take me seriously. I am fighting upper respiratory infection now and it is awful. I am so tired and weak. We have to eat things that help our immune system.