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Posts (18)

Fri, May 3 8:50am · Reclast Infusion in Bones, Joints & Muscles

For ten days before I took calcium 600mg twice a day, and I always take vitamin D. I also increased water a few days before, but day before I drank at least 64 ounces. Day of reclast infusion I drank 32 ounces before going in and took tylenol. I did not need tylenol afterwards, but tried to drink more water for the first five days and continued calcium and vitamin D. They did the reclast infusion for 15 minutes and then watched me for 30 minutes. I asked about the 15 minutes but they said that is what the manufacturer recommended and they always do it that way. Concerned me, but it was all good.

Fri, May 3 6:30am · Reclast Infusion in Bones, Joints & Muscles

@ldawn I had my first reclast infusion two weeks ago. I went in scared to death of side effects. On day two I had some achiness in my legs (like I exercised to much). It was not bad and went away in a couple days. For some reason I was extremely tired for about a week. But it was all good. I was stressed over nothing. Hope it goes as well for you. My sister had reclast infusions five times. She has never had any side effects other than a tingling feeling in her bones for a couple days. Her bone density has increased immensely.

Wed, Apr 3 6:12am · New Diagnosis of MAC/MAI & I'm scared in MAC & Bronchiectasis

@jkiemen Please let me know how it goes with your CT. Your history does sound very much like mine. I'm in the slight worsening part right now. I cringe when someone has a cold around me.

Fri, Mar 22 9:07am · New Diagnosis of MAC/MAI & I'm scared in MAC & Bronchiectasis

@lindaphilly Hi Linda
My doctor also wants to watch and wait on my ground glass nodules and bronchiectasis. They did not seem concerned at all about the nodules. They told me that it could be from having pneumonia and whooping cough in the past. I had a horrible case of pneumonia two years ago. I was in the hospital for a week. I’m sorry that I can’t tell you any more about GGN. Let me know what you find out.

Tue, Mar 19 6:38am · health at diagnosis in MAC & Bronchiectasis

@windwalker Terri, I take medication for reflux and do watch what I eat. My reflux is very manageable with the med but I do watch what I eat and do not eat heavy meals.

Thu, Mar 14 8:06am · health at diagnosis in MAC & Bronchiectasis

They diagnosed me from CT scan. Sputum tests were done and negative. The cultures were taken by me. They gave me three vials to use on three separate days.

Thu, Mar 14 7:28am · health at diagnosis in MAC & Bronchiectasis

I’m curious if anyone in the group was diagnosed with bronchiectasis and had no problems at diagnosis. I have asthma, acid reflux and had a bad case of pneumonia two years ago. I also had whooping cough ten years ago. Other than that I dread getting colds because I cough forever, but nothing other than that. I had cultures taken at diagnosis and they all came back negative. I had breathing function tests which all came back pretty good for someone with asthma. The only reason bronchiectasis was caught was because I had a CT scan for a spot they saw on my lung. I went to pulmonary and they want to do another CT at six months and if there is no change it will be once a year. Is this just a ticking time bomb for me? I feel like I am waiting for something to happen and sometimes even wonder if I was diagnosed incorrectly. I read the boards and don’t see anyone here that had this disease start like mine. I see your struggles and take it all in for what might come down the road. Thanks for your thoughts.

Thu, Feb 7 6:25am · first doctor visit in MAC & Bronchiectasis

@ling123 Thanks so much!!