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Posts (14)

5 hours ago · health at diagnosis in MAC & Bronchiectasis

@windwalker Terri, I take medication for reflux and do watch what I eat. My reflux is very manageable with the med but I do watch what I eat and do not eat heavy meals.

5 days ago · health at diagnosis in MAC & Bronchiectasis

They diagnosed me from CT scan. Sputum tests were done and negative. The cultures were taken by me. They gave me three vials to use on three separate days.

5 days ago · health at diagnosis in MAC & Bronchiectasis

I’m curious if anyone in the group was diagnosed with bronchiectasis and had no problems at diagnosis. I have asthma, acid reflux and had a bad case of pneumonia two years ago. I also had whooping cough ten years ago. Other than that I dread getting colds because I cough forever, but nothing other than that. I had cultures taken at diagnosis and they all came back negative. I had breathing function tests which all came back pretty good for someone with asthma. The only reason bronchiectasis was caught was because I had a CT scan for a spot they saw on my lung. I went to pulmonary and they want to do another CT at six months and if there is no change it will be once a year. Is this just a ticking time bomb for me? I feel like I am waiting for something to happen and sometimes even wonder if I was diagnosed incorrectly. I read the boards and don’t see anyone here that had this disease start like mine. I see your struggles and take it all in for what might come down the road. Thanks for your thoughts.

Thu, Feb 7 6:25am · first doctor visit in MAC & Bronchiectasis

@ling123 Thanks so much!!

Wed, Feb 6 9:12am · first doctor visit in MAC & Bronchiectasis

@ling123 Thank you so much for your reply. I am seeing Dr. Cole at the clinic. I have heard good things about Dr. Ferguson and I was going to ask for him if I didn't like Dr. Cole. I do like Dr. Cole though. He spent a lot of time with me. Our situations sound very similar except my rapid smear did not come back positive. But honestly, I could not get hardly anything up and almost didn't send them in because there was so little. I am sorry you have this disease, but it's nice to have someone in the Madison area to talk to.

Wed, Feb 6 7:19am · first doctor visit in MAC & Bronchiectasis

Good morning! I had my first appoint at UW Health Pulmonary Clinic yesterday. I was anxious as I had no idea how bad my CT scan was. I did really well on most of the breathing tests. Much better than someone with asthma should do. They did a sputum test a week ago. All three came back negative for MAC infection in the rapid smear but they said they could not run the culture as the sputum was too old (I did get it to them in the proper time frame). I am not sure why they could run a rapid smear but not a culture. They said they wanted the doctor to collect for another. He did not feel he had to check as I am not coughing much and not getting anything up. He said that since I feel well overall he did not want to put me through additional tests and would just redo a CT scan at six months. He said there were nodules which were probably scar tissue from whooping cough and pneumonia. He said my bronchiectasis is not that bad at the moment. He said of course if I started not feeling well I should get in before the six months. He was very thorough going through the breathing tests and CT scan with me. I was just wondering what your opinion was of the wait and watch. Thanks so much for any input!

Tue, Jan 29 7:59am · sputum test in MAC & Bronchiectasis

I have been recently diagnosed with bronchiectasis and have my first pulmonary appointment tomorrow. My doctor had me do a sputum test that was sent to the state lab and from looking at the name of the test (AFB smear) it looks like they are checking for tuberculosis. Is this normal procedure? This freaks me out. I have young grandchildren that I do not want to infect.

Tue, Jan 22 6:20am · New Diagnosis of MAC/MAI & I'm scared in MAC & Bronchiectasis

@windwalker Thanks so much for the wealth of information. I have lots of reading to do.