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Nov 15, 2019 · Multifocal Adenocarcinoma of the lung, continual recurrences in Lung Cancer

Thank you Merry. Still in a holding pattern. I've had 3 CT scans now with another scheduled for Jan 2020. My second scan showed a few more nodules and a couple of the ones grew a bit. No one seems to concerned. In between the second and third scan I found some skin cancer that had to be removed off of my shoulder. Not related per my doctors and completely cleared. My 3rd scan showed a few more nodules. We requested a meeting with my pulmonologist to understand how many is too many. He says right now, because it is early still, I need to get scans every 6 months until something or nothing changes. I try not to think too much about it until my CT date comes closer and then it becomes all consuming. Kaiser isn't an aggressive type of hospital so keeping up to date on all new information is key. You really have to be your own advocate. I do have faith and trust in my doctors so that helps. I really appreciate you reaching out to check on me. I have been pretty vocal about lung cancer and how more people die from lung cancer than most other cancers combined, including breast cancer…with only 6% of research funds going to finding a cure. The Today Show had a piece on their show yesterday that shined a light on how widespread and neglected this cancer is. I hope you are doing well. Thanks again for checking on me!

Jan 16, 2019 · Multifocal Adenocarcinoma of the lung, continual recurrences in Lung Cancer

@merpreb I had no symptoms. My mom had just passed away a few weeks earlier from lung cancer. She was diagnosed and was gone in under 4 weeks. She was the 3rd in my family to have lung cancer, although the type she and my father both passed away from is not the same as my sisters or whatever I have…so I was told. My doctor said my sister and maybe me have the "good" kind. Whatever that means.

Jan 14, 2019 · Multifocal Adenocarcinoma of the lung, continual recurrences in Lung Cancer

Hi everyone. I had a CT scan done 3 months ago (my first) as a "base" line because of my history of being a past smoke and 3 family members having lung cancer (both parents died and 1 sister is a survivor). My first CT scan came back with: "Multiple Ground Glass pulmonary nodules. More pronounced in upper lobes. Largest on right 7mm and largest on left 7mm both up lobes. Went to see a pulmonologist and he said there were more but all were too small to do anything about. He suggested we wait 3 months and do another CT.
Jump ahead 3 months later (freaking out, no sleep…) Second CT scan done. Findings: Multiple Ground Glass nodules bilaterally through both lobes. Part solid or pure ground glass. Total 10 nodules (1 lower left lobe) (9 in upper right and left lobes)
3 ea 4mm nodules unchanged from 3 months ago
1 ea 4 mm nodule NEW
2 ea 7mm nodules unchanged
3 ea 5mm nodules unchanged
1 ea 5 mm nodule NEW
My doctor says since they are all too small to do anything, he is recommending we wait 6 months and do another CT.
Everyone says YAY great news…me? I'm freaking out. 10 nodules???? 9 in upper lobes? 2 new ones?
Is waiting the thing to do??? I am not sure what to do. I have Kaiser if anyone if familiar with it. You have to be your own advocate to get ANYTHING done.
Thanks for listening. I feel so scared and unsure what to do.