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Posts (12)

Wed, Apr 17 7:14pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@becky33 Thanks so much for sharing!! Your journey and progress in this battle are an inspiration. Wishing you a clear scan and healthy days from here on!!!
Blessings, Yaggi01 (an MAI sufferer also on the Big 3 for 20 months now 😏)

Thu, Mar 7 5:13pm · Survey about Non-Tubercular Mycobacterium - please participate in MAC & Bronchiectasis

I did the survey Terri….Yaggi01 (Deb)

Sun, Feb 17 1:57pm · New Diagnosis of MAC/MAI & I'm scared in MAC & Bronchiectasis

@Induh66 Hi, i agree with both @america and @pfists….nothing to worry yourself about!!! I have had 3 so far and was sedated and didn’t know anything that happened. Woke up and just had a little scratchy throat. I have been on the Big 3 antibiotics for 18 months now. Probably looking at going on the new approved inhaled Arikayce soon. Blessings to you on your test and please don’t stress yourself over this!! Let us hear from you afterwards!! Yaggi01

Fri, Jan 25 9:31pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@irene5 Hi, yes would you mind to share the name of any docs in Nashville who treated you for your condition. We live close to Clarksville but use Nashville doc’s for most of our care. Thanks for sharing, Yaggi01

Fri, Jan 25 8:32am · Timing of medications for MAC in MAC & Bronchiectasis

@sueinmn….Hi, yes absolutely, taking the meds consistently on days prescribed is a must. I am glad you found a way to tolerate them. Take care.
Yaggi01

Wed, Jan 23 10:07pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@america…when you go to Amazon put “strepsils lozenges” in the search box and they should be displayed. Hope that helps. Yaggi 01

Wed, Jan 23 1:20pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@heathert Hi, thanks so much for the info on the lozenges!!! I ordered them from Amazon and with them coming from the UK, the projected date of arrival was the middle of February. I was surprised yesterday when they arrived and the timing was perfect as I have been battling a slight sore throat. Used one today and they are amazing!! Thanks for sharing!!! Blessings, Yaggi01

Mon, Jan 21 7:45pm · Timing of medications for MAC in MAC & Bronchiectasis

@jkansas66 After watching a lecture by one of the leading docs with National Jewish Health, I adjusted the way I take my meds to the suggested way….I take Azithromycin and Ethambutol together in the mornings one hour before coffee and/or breakfast. And I take the Rifampin at bedtime and try to limit food and water three hours before taking it. The info also suggested if there was any stomach distress with that med to eat a couple saltine crackers with it. I haven’t had any issues taking it this way. I hope this helps.
Take care, Yaggi01