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First Name
Jenny

State/Province
MA

Health Interests
Cancer, Immune disorders, Mental health disorders, Women's health issues

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Tue, Jan 29 2:43pm · Rare cancer: ovarian clear cell carcinoma in Gynecologic Cancers

I recently had major surgery to get a Large mass removed from my pelvic area. So I had surgery to get it all out, unfortunately had to have hysterectomy at 38yrs old…
So the gyno/oncologist says after "surgery went great, its ALL out, no treatment necessary"
As other nurses/doctors have said "you NEVER tell a patient it's all out, all set, you say surgery went well, she's doing good, just have to wait for the biopsies"
But he didn't, he kept it at…"its all out"
A week later, the doctor that "Got it all"
Come in my room and says, just got the biopsies back, you have 3 different types of cancer in your pelvic area 2 of them were stage 1A and didn't need treatment
But the one that was on my left ovary is called clear cell carcinoma, it's a rare, dangerous one to have, and told me I needed to have chemo to treat it to stop it from spreading. A few days later he and another oncologist from Dana Farber said I didn't need chemo!!!!
I had had it and came to Beth Israel and they are saints, my wound started to heal and their recommendation is to start chemotherapy now before it spreads, and I want to enjoy every minute of everyday, If Chemo now will prevent it from spreading, I'm going to have to do chemo.

What are people's thoughts???
Has anyone been diagnosed with ovarian clear cell carcinoma?
Did people choose to do chemotherapy to use as preventive reasons?

PLEASE PLEASE PLEASE, I want feedback because my mother doesn't think I should be getting chemo…it hurts REALLY BAD NOT TO HAVE HER SUPPORT

Fri, Jan 25 8:35pm · Rare cancer: ovarian clear cell carcinoma in Gynecologic Cancers

I recently had major surgery to get a Large mass removed from my pelvic area. So I had surgery to get it all out, unfortunately had to have hysterectomy at 38yrs old…
So the gyno/oncologist says after "surgery went great, its ALL out, no treatment necessary"
As other nurses/doctors have said "you NEVER tell a patient it's all out, all set, you say surgery went well, she's doing good, just have to wait for the biopsies"
But he didn't, he kept it at…"its all out"
A week later, the doctor that "Got it all"
Come in my room and says, just got the biopsies back, you have 3 different types of cancer in your pelvic area 2 of them were stage 1A and didn't need treatment
But the one that was on my left ovary is called clear cell carcinoma, it's a rare, dangerous one to have, and told me I needed to have chemo to treat it to stop it from spreading. A few days later he and another oncologist from Dana Farber said I didn't need chemo!!!!
I had had it and came to Beth Israel and they are saints, my wound started to heal and their recommendation is to start chemotherapy now before it spreads, and I want to enjoy every minute of everyday, If Chemo now will prevent it from spreading, I'm going to have to do chemo.

What are people's thoughts???
Has anyone been diagnosed with ovarian clear cell carcinoma?
Did people choose to do chemotherapy to use as preventive reasons?

PLEASE PLEASE PLEASE, I want feedback because my mother doesn't think I should be getting chemo…it hurts REALLY BAD NOT TO HAVE HER SUPPORT