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Jan 13, 2019 · Prolonged phenobarbital usage and connection with dementia? in Epilepsy & Seizures

So I’ve been on phenobarbital for nearly 30 yrs grand mals are controlled a few years ago I do have auras, lately I have had a ton of balance focus and memory issues neurology says the phenobarbital causes dementia in older folks and most likely this is my issue. Anyone know anything of this? They recommend I switch meds to keppra but I’ve heard a lot of horror stories on it, better ones? I’ve been seizure free more than 20 years and don’t want to do it again but it’s better than dementia for me!

Jan 12, 2019 · Living with epilepsy - Introduce yourself & meet others in Epilepsy & Seizures

Hello and boy do I need advice I have phenobarbital controlled epilepsy for 30 years I am 55 and this past year have been having a ridiculous amount of memory, cognitive and balance issues. Dr says it's the meds and I need to consider switching two years ago a different neoro told me not to try to switch as my seizures were Grand mal,last one so many years ago they say was 5 minutes I dunno , she said just switching could kill me. My dilemma! I know epilepsy is danger no matter what but I've done so good to have my brain function back would be amazing honestly I can't remember a thing anymore,,,thoughts?