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Posts (11)

Wed, May 22 4:11am · Bladder Cancer/Small cell bladder cancer in Cancer

Hi, my husband has 33 bladder radiation, no brain radiation.
It’s no medical guideline.
He had Nivolumab for 3 times and Friday he will start with Ipilimumab
Next scan beginning of July.
I‘m scared

Sun, Apr 7 8:37am · Bladder Cancer/Small cell bladder cancer in Cancer

Hi Jimmy, everthing seems to be hopeless…
The last Scan showed that he has a local rezidiv:-(
Radiation for 31 times Start on Thursday.
The histology showed no PDL1 marcers, so there ist no chance for Pembrolizumab ( Keytruda)
Uniklinik Heidelberg called us, he can Start with Nivolumab and Ipilimumab, also on Thursday.
Good result, but only for 20%.
I pray that he is on of the 20%.
I know someone with a maligne Melanom,
He had metastasis 3 years ago, he started with this combi, he is free of cancer for 3 years now.
They told hin he has 3 more months.
I wish you Good luck🌈🤞🏼

Fri, Mar 22 7:55am · Bladder Cancer/Small cell bladder cancer in Cancer

Hi
Jimmy, good to hear that there is no growth in lung and liver!
Hope radiation will help🍀
My partners last scan was on 3/10/2019
Everything was ok 👌🏼 😍
Are you doing Tumor marcers like Chromogranin A, NSE and Cyfra 21?

Fri, Feb 15 1:38am · Bladder Cancer/Small cell bladder cancer in Cancer

Ah, ok.
I only know Pembrolizumab ( Keytruda in the U.S.)
Wish you the best🍀

Tue, Feb 12 6:46am · Bladder Cancer/Small cell bladder cancer in Cancer

Dear Colleen, thank you for answering.
Two weeks ago he had his last application of Cistern and Etoposid.
Everyone recommended to do a Pet CT scan every 8-12 weeks.
We are ok…a bit scary, but full of hope💕
In case of a rezidiv, the plan is to apply Topotecan or Pembrolizumab
But 🍀🍀🍀🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼
we hope

Tue, Jan 22 1:22am · Bladder Cancer/Small cell bladder cancer in Cancer

Hi, I think it’s better for an older person to stay in the clinic for Cisplatin and to have a port.
My partner has no problems with his venes, but many people in the German bladder Forum told about problems without a port.
It’s VERY important to drink a lot during the Cisplatin chemo, otherwise he will have kidney problems.
Then they have to change or stop the chemotherapy.
In the hospital they are able to infund water directly in the blood ( sorry for my English 😬)
Could you maybe find out the name of the immun therapy?
I wish you the best for the therapy 🙏🏼🙏🏼🙏🏼

Sat, Jan 19 6:54am · Bladder Cancer/Small cell bladder cancer in Cancer

Dear Sandielegal, thank you for answering and so glad to hear, that you are so well💕
Did you have a radical cystectomy?
And had your cancer spread when they diagnosed it?
I know that this is a big problem!:-((
I wish you the best 🙏🏼

Sat, Jan 19 1:50am · Bladder Cancer/Small cell bladder cancer in Cancer

Good Morning@tattrigo,
my partner had his 6 th cycle of Cisplatin/ Etoposid on Wednesday/ Thursday/Friday.
At the beginning of each cycle he starts with a medicine against nausea.
The name is Akynzeo, its very good.
The first day, the Cisplatin- day is pretty long, up to 6 hours, because of the additional NACL ( to take care of the kidneys)
He should drink a lot, thats very important
.He has side effects like a moderate Nausea, sometimes headache, muscle pain, but its tolerable.
I‘m also in the german bladder forum, there are also some small cell bladder Patients.
Two had to stop the chemotherapy, one woman said, it was like hell, but its 6 years ago
I think its very invidual.
Is his cancer local or did it spread?
Good look for your father 🙏🏼🤞🏼